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Neurofibromatosis & Brain Impact on Recovery Now with Kim Justus

  • Broadcast in Health
Brain Injury Radio

Brain Injury Radio

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Cassey Blumenthal has Neurofibromatosis Type 1 as well as dyslexia which is common with NF. She was diagnosed at age 7 and currently there is no cure for neurofibromatosis. 

Neurofibromatosis is a genetic disorder that disturbs cell growth in the nervous system, causing tumors to form on nerve tissue. These tumors may develop anywhere in your nervous system, including in your brain, spinal cord and nerves. Neurofibromatosis is usually diagnosed in childhood or early adulthood. Dr Frederick Covington will join us to discuss therapies and assistive technology that he is creating. www.askdrcovington.com

The tumors are usually (benign), but in some cases these tumors become cancerous. Effects of neurofibromatosis can range from hearing loss, learning impairment, and heart and blood vessel (cardiovascular) complications to severe disability due to nerve compression by tumors, loss of vision and severe pain. Learn more about this disease that inflicts about 1 in 3000 people.

This show is a gathering place for anyone seeking recovery from the challenges of life on life's terms. We discuss useful tools that have helped us lighten the load, of our journey through recovery. This is a "we" recovery program, because it is in the "we," that we find the new "me."

We focus on the four A's of Recovery: Awareness, Acceptance, Action and Adaptation. This is a place for survivor's striving to become thrivers.

The front half of show is a featured guest. to join us in the discussion. The second part of the show is Open Mic and some great Indy Music, sure to inspire! Host is Kim Justus, author of In a Flash: Miracles Here and Beyond found at www.inaflash.org & "Like" at www.facebook.com/inaflash.org and www.facebook.com/braininjuryradionetwork

 

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