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Dementia and Frontotemporal Degeneration

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Powerful Patient

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Katie Brandt is a powerful public speaker and passionate advocate, educator and trainer in the areas of caregiver support, frontotemporal degeneration (FTD) and the impact of dementia on caregivers and families. Presentations at conferences, colleges, skilled nursing facilities, Massachusetts General Hospital, and the Massachusetts State House have focused on the medical, legal, financial, logistical and emotional challenges of caring for a loved one with dementia.

As Regional Network Coordinator for the Association for Frontotemporal Degeneration, she provides support to families, and helps medical professionals think creatively about how they can enhance partnerships with caregivers to improve outcomes for patients.

At a recent conference on Customer Centric Medical Information, Katie participated on a panel: Understanding the Role of Self-Educated Patients as Medical Information Customers.

On Rare Disease Day 2014 she spoke at a session at the Massachusetts State House.

Katie shares her own story with Joyce and Mike, and talks with them about caregiving, customer centric medical information and teamwork.

For more information on Frontotemporal Degeneration and dementia, please see