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Nell Lake, author of "The Caregivers: A Support Group's Stories of Slow Loss, Courage, and Love," joins Denise to share about the inspiration for her book and her lessons learned. Nell spent two years attending a caregivers support group and following the caregivers and their family members in their daily lives. Before working on the book, Nell was a freelance magazine writer and the founding editor of the Nieman Narrative Digest at Harvard. She has also taught writing at Boston University and reported for public radio. She lives in Massachusetts with her husband and two sons.
eCareDiary will speak to Mara Botonis, best-selling author of, “When Caring Takes Courage” and Founder of Biography Based Care offering tools, resources and training for family caregivers.
eCareDiary will speak to P.K Beville, geriatric specialist, author and founder of Second Wind Dreams about her research-based Virtual DementiaTour, an experiential toolkit designed to help family caregivers move from sympathy to empathy and better understand the behaviors of their loved ones.
Alzheimer's Speaks Radio was created to have honest discussions and real needs and resources for those dealing with dementia. Please feel free to call into the show or use the chat box to communicate with us during the live show. If you can't make the live show we would still love to hear your thoughts about the topic.
Today we have patient advocate, Michelle Chaffee from Minneapolis, MN with us. It was through Michelle's own family medical crisis along with her professional background that she created Alska. Michelle understood the needs of caregivers across the spectrum of care and saw the gaps in the care system, which lead to the creation of a remarkable tool that supports and empowers individuals and optimizes delivery of care. Come join us and learn how this tool might be able to assist you. You can contact Michelle via Email
Interested in a new Clincal Trial? Check Out Alzheimer's Study
For more information on dementia and caregiving go to Alzheimer's Speaks Resource Website.
Are you helping a family member, spouse or someone in need but losing yourself in the process? How can you find comfort and support for you when your daily activities take every ounce of life out of you? Can you love and care for others but also love and care for yourself? What are the limits of our heart strings? And can we recognize what is within our grasp to help and what is not in our power to change as God's plan is in control?
Peter Rosenberger, author of Hope for the Caregiver: Encouraging words to strengthen your spirit will be sharing his personal story and how he now helps others to find the support caregivers so desperately need. Peter offers caregivers practical, faith-based and compassionate help and understanding. He will be sharing about loss of identity, isolation, fear, resentment and guilt while offering hope to those who care for others.
For more information visit: www.caregiverswithhope.com
We have several guests who have served as personal caregivers to family members and have learned valuable tips for others anticipating this position.
Lorraine McCall, has been a primary caregiver to her dad for nearly 5 years. What has she learned and what can she share with us to offer assistance? Has it been easy, fulfilling, difficult, worth it?? What lessons has she learned?
Marlo Oliver-Glass, a caregiver to her husband who was diagnosed as a terminally ill patient. What was that experience like? What lessons did she learn along the path to his full recovery? Was it difficult?
Joyce Mottley, who has developed a plan to offer care to the caregivers, has been a healing balm to many as they go through their illnesses. A survivor herself, how important is it to take of one's self first?
These ladies offer advice, suggestions and perhaps most important they offer care in various forms. A new energy facility, a community initiative and a complete program for the caregiver.
eCareDiary's caregiving expert, Margery Pabst will speak to Dr. David Decker, Executive Director of Cancer Institute at Florida Hospital, about advances in cancer research and treatments benefiting patients and caregivers.
Join Dave Nassaney, The Caregiver’s Caregiver, as he interviews Author, Carol Levine, the director of The Families and Health Care Project at The United Hospital Fund, a health services research and philanthropic organization whose primary mission is to shape positive change in health care for the people of New York (and elsewhere).
Their campaign, Next Step in Care, provides easy-to-use guides to help family caregivers and health care providers work closely together to plan and implement safe and smooth transitions for chronically or seriously ill patients.
Transitions are moves between care settings, for example, hospital to home or rehab facility, or the start or end of home care agency services. Because transitions are often rushed, miscommunication and errors can occur.
Her book, Living in the Land of Limbo: Fiction and Poetry about Family Caregiving, is a first-of-its-kind anthology of short stories and poetry about family caregiving by renowned authors and others has just been published. Compiled and edited by Carol Levine, and published by Vanderbilt University Press, the new volume is a valuable addition to the national discussion on family caregiving and to the Fund’s work, which has focused on improving partnerships between caregivers and health care professionals since 1996.
Maria is: Fun, Creative, Inspiring, Passionate, Innovative, Honest, Sincere, Joyful, Engaging, Calming, Welcoming, Down to Earth, Playful, Interesting, Knowledgeable, & Motivational. Constantly combining all of her experience and intuition, she started creating inspirational classes to help people learn about themselves and live a life that brings them joy. She is very excited to be helping the 21 authors of the book she is putting together (Living Passionately: 21 People who Found their Purpose and How You Can Too) to publish their story's, that would otherwise not be told. These stories have the potential to inspire people around the world, since they are stories of overcoming homelessness, addiction, poverty, caregiving responsibilities, trauma, grief, cancer, opression, illness and uncertainty. Maria was the Keynote Speaker for the Spring Caregiver Conference in Kingston, NY earlier this year, an all day event created to provide family caregivers with inspiration and helpful resources.
Join Dave Nassaney, The Caregiver's Caregiver, author of numerous articles and books, speaker, life coach, and radio talk-show host for caregivers who are burned out, but his most important role is being a caregiver to his lovely wife, Charlene. His latest book that he is now working on is entitled: "The Caregiver's Caregiver, A Guide to Avoiding Burnout." It is designed to teach caregivers who are taking care of their loved ones (due to an illness or disability) how to take care of themselves FIRST. If they don't learn this, they will likely suffer burnout and become as helpless as the person they are caring for. Tune in every WEDNESDAY at NOON PST (Re-broadcasts Saturday at 3:30pm PST,) for interviews with experts in the caregiving field, as they discuss topics of great interest to caregivers, which will help them avoid burnout.
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