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  • 00:30

    Is Your Heart On: On-line Dating, Rare Disease Day and World Birth Defect Day

    in Lifestyle

    JS and the Count continue their discussion of on-line dating with relationship expert, Julie Sipra http://www.cyberdatingexpert.com/meet-julie/.  They will discuss Rare Disease Day and World Birth Defect Day to bring about acceptance of others regardless of differences. As always, what's going on in ATL, TBT and more!  Call in to join the show: 347-857-4104. Tell us your on-line dating stories

  • 00:44

    Diagnosing a rare disease - a case in Ireland

    in Health

    Mike and Joyce speak with Gloria in Ireland.  She shares her family's adventure in achieving a diagnosis of her daughter first for a brain tumor, and then for a rare syndrome, von Hippel-Lindau (VHL) which has implications for other kinds of tumors as well.


    We learn how her persistence was essential in getting to a correct diagnosis and appropriate treatment for her daughter, who is now doing very well.  There are lessons for all of us in trusting our own instincts, and in knowing what is normal and what is unusual in your own family members.  The doctors bring their knowledge of the science and of sorting out what diagnosis might be right.  The patient and the family bring their description of the symptoms the sequence of events, and the pattern of when the symptoms are better or worse.  It is only through this partnership that we can get to a diagnosis, especially of a rare disease.

  • 01:01

    Rare Disease Day in DC: An update

    in Health

    Healthcare Whisperer welcomes back Mary Elizabeth Parker to the show.  She is here to discuss her recent trip to Washington, DC to be a part of Rare Disease Week.  She was involved in many events including meeting with several congress people.  She will be discussing upcoming legislation, research and what is happening at the NIH Rare Disease Department.


    Mary Elizabeth is dedicated through her work with U R Our Hope, to helping families and individuals finds answers to undiagnosed problems.  She is also a voice for those who are suffering with rare diseases and need assistance getting what they need from the healthcare system.  She is an inspiration for many including me!


    Be sure to tune in to get the latest updates and hear the moving and inspiring stories of those Mary Elizabeth works with.


     

  • 01:30

    Thyroid Disease 101 Weekly

    in Health

    Join Graves Disease patient Dan Collins & Hashimotos patient Danna Bowman as they discusses the different thyroid diseases, but also dive into different coping techinques, as well as ways to bring your body into a more akalined state so that you feel better. They have  conversations with Thyroid Patients, Doctors, Nutritionists, ND, Fitness Coaches, anyone that has something to do with Thyroid Patients.


    THIS week is it with a grateful heart , we welcome "Hyporthyroid Mom" Dana Trentini to our show. Nothing more to type but that. Join us LIVE or on archive and hear one of the greatest story and reasons to be a Thyroid advocate. 

  • 01:26

    Thyroid Disease 101 Weekly

    in Health

    Join us weekly to share how living with any Thyroid Disease alters the way of life for all of us. Hosted by Graves Disease patient and Thyroid Storm survivor Dan Collins, Dan interviews Medical Professionals, Health & Wellness Professionals, Thyroid Patients and People that help spread the word about Thyroid Disease. Feel free to join the discussion every Sunday @ 2:00 pm am Central time.
    This week Dan welcomes Danna Bowman, Founder of Thyroid Nation. Join Danna & Dan as they discuss Thyroid Nation and what Danna sees for the future of the fight with Thyroid Disease. 

  • 01:30

    Thyroid Disease 101 Weekly

    in Health

    Join Dan & Danna this week as their conversation is with Stacey Robbins, author of "“You’re Not Crazy and You’re Not Alone”, Join them as they discuss her battle with Hasimotos disease and how she learned to cope with this disease. Join us as we learn and discuss thyroid disease that effects close to 27 million people , of which only half are being treated for this disease. It is more than taking a pill everyday

  • 01:01

    Thyroid Disease Weekly

    in Health

    Join us weekly to share how living with any Thyroid Disease alters the way of life for all of us. Hosted by Graves Disease patient and Thyroid Storm survivor Dan Collins, Dan interviews Medical Professionals, Health & Wellness Professionals, Thyroid Patients and People that help spread the word about Thyroid Disease. Feel free to join the discussion every Sunday.

  • 00:49

    Thyroid Disease Weekly

    in Health

    Join us weekly to share how living with any Thyroid Disease alters the way of life for all of us. Hosted by Graves Disease patient and Thyroid Storm survivor Dan Collins, Dan interviews Medical Professionals, Health & Wellness Professionals, Thyroid Patients and People that help spread the word about Thyroid Disease. Feel free to join the discussion every Sunday 

  • 00:52

    Thyroid Disease Weekly

    in Health

    Join us weekly to share how living with any Thyroid Disease alters the way of life for all of us. Hosted by Graves Disease patient and Thyroid Storm survivor Dan Collins, Dan interviews Medical Professionals, Health & Wellness Professionals, Thyroid Patients and People that help spread the word about Thyroid Disease. Feel free to join the discussion every Sunday 

  • 00:36

    Rare Disease United - One in Ten is Affected

    in Health

    Patricia Weltin, Founder and CEO of Rare Disease United, will speak with Mike and Joyce on Thursday, January 23.


    Patty's two daughters have a rare disease called "Hypermelanosis of Ito" (HI).  She is not looking to educate you about HI.  Instead she wants you to know that nearly 25% of the United States is affected, directly or indirectly, by some rare disease.  Each individual rare disease may be rare (affecting less than 1% of the population), but the experience of having a rare disease is not rare at all.  And each individual or family with a rare disease encounters the same hurdles over and over, throughout the country and the world:
    We all struggle:
    <ul>
        <li>to achieve a diagnosis</li>


        <li>to find a doctor who know anything about our rare disease</li>


        <li>to find an appropriate treatment for the condition</li>


        <li>to find others who understand and can provide coaching</li>
        <li>to encourage drug development to alleviate or cure our disease.</li>


    </ul>


    Rare Disease United focuses on raising awareness among the general public in Rhode Island and Massachusetts, and helping to facilitate the gathering of people affected by rare diseases so that they can support one another.


    Come listen to the great plans Patty has for celebrating Rare Disease Day at the end of February 2014, and learning how you can join together with this energetic group and with other such groups worldwide.

  • 00:24

    Rare Book Series Songs and Stories by Golden Rod Books 1896

    in Books

    Songs and Stories Golden Rod Books 


    Compiled and Adapted by John H. Haaren, A.M.


    Join us for a interesting look at the short stories and poems from a Golden Rod Second Reader Book published in 1896! 


    Featuring:



       Short Story: My Lady Wind
       Poem: A Pleasant Day
       Song: Robin and Cat


    Published by Newson & Company 


    New York, Boston, Chicago


    We will have a short Video you can preview after the show to take a look at this well loved, used and worn book....just think about how many children may have used this reader book....join us at the global campfire!


    Discarded by Seattle Public Library in 1964, now a part of Storytellers Campfire Rare Book Library Collection!