Powerful Patient

Powerful Patient

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Do you feel helpless in the face of "the system?" This show is to help you learn how to take control and steer your way to health. Hear how others have met these challenges and overcome them. Learn how you can do so too. This program is a forum to share your experiences, ask your questions, and learn how to create and manage your health care team. Make the healthcare system work for you!

Upcoming Broadcasts

Our guest is Dr. Uchenna Onyeachom, Director of Endovascular Researh at Heart and Vascular Outcomes Research Institute in Beverly, Massachusetts, http://www.hvori.org We will be talking with him about the Venous Patient Outcome Registry. We will talk about the kinds of conditions, including peripheral venous disease and varicose veins, about which information is being collected, and why patients and physicians might want to participate. The Venous Patient Outcome Registry (VPOR), the first-ever patient-centered online registry, was developed to assess patient outcomes and quality of life for the various treatments of venous disease by standardizing the collection and analysis of clinical information, patient trends and practice patterns by specialists nationwide. Since its launch , VPOR is already recruiting sites and patients from all regions of the United States. VPOR aims to provide clear, impartial evidence on the effectiveness, benefits and harms of available treatment options for both patients and physicians. Align the needs of patients with the performance of physicians, VPOR will help to translate research findings into information that is useful to clinicians, policy makers, payers and regulators for better patient care. http://www.venouspatientregistry.org The Heart & Vascular Outcomes Research Institute (HVORI) is a non-profit research organization dedicated to the study of heart, vascular and related disorders. HVORI's mission is to provide excellence in patient-focused outcome research, thereby improving quality of care, advancing clinical outcomes, reducing healthcare costs and driving innovation.
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On-Demand Episodes

Joyce speaks with Anne Wilson, CEO of Kidney Health Australia (kidney.org.au), an organization dedicated to helping all Australians maintain good kidney health throughout their lifetimes. While traditionally focused on kidney diseases that... more

In order to maintain privacy and confidentiality, there are rules of access to Electronic Health Records (EHR) that can sometimes present barriers to delivering the best care. Tracy Zervakis and her daughter recently had quite an... more

In the last year there have been several new articles that add greatly to our understanding of a rare form of kidney cancer, Hereditary Leiomyomatosis and Renal Cell Cancer. Joyce speaks with Graham Lovitt, Chairman of the HLRCC... more

Mike Lawing attended the Ninth European Kidney Cancer Symposium in Dublin last April, and has carefully crafted an excellent report to share that meeting with all the patients and family members who wished they could be there.... more

Joyce and Mike speak with Edward Grandi about Sleep Apnea, snoring, and getting enough sleep. Grandi, the former executive director of the American Sleep Apnea Association, is a nationally and internationally invited speaker in the... more

Joyce and Mike speak with David Tuccaro Jr., the subject of the new book Bad To The Bone (by Marala Scott). David is a very inspirational young man who has defeated Leukemia. David's life was saved by a bone marrow donor from the... more

Katie Brandt is a powerful public speaker and passionate advocate, educator and trainer in the areas of caregiver support, frontotemporal degeneration (FTD) and the impact of dementia on caregivers and families. Presentations... more

Allen Wilson of the Pheo Paratroopers joins Joyce and Mike to talk about the organization, its mission, and the recent International Conference on Pheochromocytoma and Paraganglioma. Pheochromocytomas ("pheos" for... more

Stephanie Sugars has been moderating an online discussion group for families deaing with Peutz-Jeghers Syndrome since 2000. Over the years she has seen lots of changes. Peutz-Jeghers Syndrome is a genetic disease. One tiny... more

We would like to help the radiologists answer the question: "How many CT's is too many?" Mike and Joyce talk about Joyce's recent presentation to the International Conference on Radiation Protection in Medicine. We review the findings of our... more
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