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Powerful Patient

Powerful Patient


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Do you feel helpless in the face of "the system?" This show is to help you learn how to take control and steer your way to health. Hear how others have met these challenges and overcome them. Learn how you can do so too. This program is a forum to share your experiences, ask your questions, and learn how to create and manage your health care team. Make the healthcare system work for you!

On-Demand Episodes

Medical conditions that affect organ systems in more than one medical specialty area are particularly hard to deal with. Diagnosis, management, all are difficult because no single doctor understands the interworkings of the problems. This... more

What does it mean to "empower" a patient? Jack Aiello of San Jose, California is a leading patient-advocate in multiple myeloma. In January of 1995 Jack had a terrible backache. He was diagnosed with multiple myeloma through a blood... more

Robin and Joyce speak with Zoe Barry, Founder and CEO of ZappRx, a secure collaborative online platform that allows patients, physicians and pharmacists to work together to improve patients' access to treatment for rare and orphan... more

Joyce and Robin talk with Dr. Roni Zeiger, CEO of SmartPatients, about the resources for cancer patients available through SmartPatients.com About Smart Patients Smart Patients is an online community for motivated patients and their... more

An Event to spur innovative medtech solutions for pressing challenges around oncology prevention, diagnostics and care will be held February 27-28, 2016, in Boston. TheConsortium for Affordable Medical Technologies (CAMTech),... more

Diane Tomaz of the Massachusetts Adoption Resources Exchange (MARE) talks about adoption and the needs of the children waiting in foster care. Many of these children have special needs. Addy is a good example. Addy is a 4-year-old... more

There are many challenges common to all rare diseases: 1. How to get a correct diagnosis? 2. How to find doctors who understand the condition and can provide therapeutic help. 3. How to manage day to day, making choices and getting... more

Robin and Joyce speak with Lesley Bennett, state coordinator for the National Organization for Rare Disorders (NORD) in Connecticut, about the importance of the voice of the "consumer" in healthcare as in retail or other "marketing"... more

What happens at a patient support conference? Is it worthwhile to go, or will it be stressful? Carla talks with Robin and Joyce about her own recent experience. Carla applied to the New England Regional Genetics Group... more

The annual Kidney Cancer Symposium was held this year in Miami, Florida. It was chaired by Dr. Toni Choueiri of Dana-Farber/Harvard Cancer Institute in Boston, and contained a wealth of information for physicians, both urologists... more
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