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Powerful Patient

Powerful Patient

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Do you feel helpless in the face of "the system?" This show is to help you learn how to take control and steer your way to health. Hear how others have met these challenges and overcome them. Learn how you can do so too. This program is a forum to share your experiences, ask your questions, and learn how to create and manage your health care team. Make the healthcare system work for you!

On-Demand Episodes

Batten Disease is one of the group of lysosomal storage diseases for which there is finally a medication to help.

Joyce and Robin speak with Karen Gibson of Florida. Karen shares her story of living with kidney cancer and working with others in her community to inspire them with hope.

Lung cancer affects more people than all the other prominent cancers combined. We have all heard that lung cancer is usually caused by smoking. But other causes are being understood -- causes that we can now avoid. Alison Grimes of... more

Dr. Ross Camidge is an international expert in Lung Cancer. Dr. Camidge speaks with Robin Martinez and Joyce Graff about his research, and what people need to know about lung cancer. His research covers the causes and... more

The Bill & Melinda Gates Foundation and Rotary International have partnered to end polio -- not just in the U.S. but worldwide and forever. You can help. Dr. Jay Wenger, Director of Polio Eradication for the Gates Foundation, speaks with... more

What has Powerful Patient been up to in 2016? We took a hiatus from our regular broadcasts due to the press of other activities -- so what all have we been doing? Joyce shares her adventures and a quick update from Robin and Mike, and... more

Krystye, a young mother in Maine, gave birth to a beautiful, long-for baby daughter. Within days it was clear that something was wrong. Krystye shares her experience with us -- how she worked with her doctors, advocated for her... more

Medical conditions that affect organ systems in more than one medical specialty area are particularly hard to deal with. Diagnosis, management, all are difficult because no single doctor understands the interworkings of the problems. This... more

What does it mean to "empower" a patient? Jack Aiello of San Jose, California is a leading patient-advocate in multiple myeloma. In January of 1995 Jack had a terrible backache. He was diagnosed with multiple myeloma through a blood... more

Robin and Joyce speak with Zoe Barry, Founder and CEO of ZappRx, a secure collaborative online platform that allows patients, physicians and pharmacists to work together to improve patients' access to treatment for rare and orphan... more
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