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Tay Sachs and Allied Diseases - Choosing a treatment path

  • Broadcast in Health
Powerful Patient

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Kim Kubilus from National Tay Sachs & Allied Diseases (NTSAD) will speak with Joyce Graff about, "Finding Your Philosophy of Care." Also hear the personal stories of finding a care path from 5 mothers of Tay-Sachs children. Topics addressed will include: defining your care goals & values; developing a working relationship with the pediatrician to create a care plan that fits your goals & values;role of pediatric hospice and end-of-life planning. Visit www.nstad.org for more information.

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