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Jim Johnston

Castleman's Disease Discussion

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Jim Johnston is the International Castleman's Disease Organization Executive Director. The International Castleman's Disease Organization (ICDO) is a patient advocacy forum designed for individuals who have been diagnosed with this rare disorder. Castleman's Disease (CD) is initially characterized by a benign single or multiple growths within the lymphatic tissue. It is normally found by scans in the neck, chest, abdomen or pelvis. This support group is intended to provide an interactive discussion for patients, families, and caregivers of Castleman's Disease. Information provided is for general education purposes only and should not be construed as medical advice nor is is this information intended to replace the advice of your physician. This forum will also serve as a platform to present and discuss pending, current, and proposed clinical trials for Castleman's.

On-Demand Episodes

ICDO hosted a one-day summit December 2, 2009 in New Orleans, ahead of the 51st American Society of Hematology (ASH) Annual Meeting. Sponsored by Johnson & Johnson Pharmaceutical, Research & Development, LLC and... more

An interview with Professor Miles Prince, Melbourne, Australia. This pre-record is for 28FEB2010 Rare Disease Day Blogcast.

Dr Zeldis is CEO of Celgene Global Health and Chief Medical Officer of Celgene Corporation, Summit, NJ. Prior to that he was Celgene’s Senior Vice President of Clinical Research and Medical Affairs. Dr. Zeldis attended Brown University for... more

Dr Tricot is the “Professor, Department of Medicine; Director, Utah Blood and Marrow Transplant and Myeloma Program," Huntsman Cancer Institute, University of Utah, Salt Lake City, UT. This interview will encompass the capability of... more

This presentation is an International Castlemans Disease Organization interview with Dr Frits Van Rhee, Professor of Medicine and Director of Clinical Research for the Myeloma Institute for Research and Therapy University of Arkansas... more

Mr. Mancino is the International Castlemans Disease (ICDO) General Counsel representing the legal medical affairs of the organization. Mr. Mancino's interview will discuss the responsibility of the patient, patient advocate, and caregiver of... more

Dr. Kenneth Anderson is the Craft Family Professor of Medicine at Harvard Medical School and Chief, Division of Hematologic Neoplasia, Dana Farber Cancer Institute. Dr Anderson is also the ICDO Chief Medical Officer and... more

Castleman's Disease (CD) is a rare disease categorized as non-Hodgkin. The International Castleman's Disease Organization (ICDO) is a patient advocacy network created to provide patient information on this rare disease, introduce CD... more

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