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Rare Disease Day in DC: An update

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Healthcare Whisperer

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Healthcare Whisperer welcomes back Mary Elizabeth Parker to the show.  She is here to discuss her recent trip to Washington, DC to be a part of Rare Disease Week.  She was involved in many events including meeting with several congress people.  She will be discussing upcoming legislation, research and what is happening at the NIH Rare Disease Department.

Mary Elizabeth is dedicated through her work with U R Our Hope, to helping families and individuals finds answers to undiagnosed problems.  She is also a voice for those who are suffering with rare diseases and need assistance getting what they need from the healthcare system.  She is an inspiration for many including me!

Be sure to tune in to get the latest updates and hear the moving and inspiring stories of those Mary Elizabeth works with.

 

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