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This show is about the courage of two families to find answers to their child's undiagnosed illness. It is the story of learning to be the voice and advocate for your child. It is the story of never giving up or taking no for an answer. This is the story about wanting the absolute best for their child. This is the story of grace, love and strength.
Daniella Ferreira is the mother of Naylah and Jennifer Clatterbuck is the mother of Emma. Both girls were born with a genetic disorders that went undiagnosed for an extended length of time. Both Jennifer and Daniella will tell us about what life has been like trying to find a diagnosis, getting the medical profession to listen and finally hearing the words, "We know what it is." Mary Elizabeth Parker will also be joining to give her insights on the struggles these two families had and updates on the incredible work of her organization U R Our Hope.
Be sure to listen and have your questions and comments ready.
"Undiagnosed:Medical Refugees" is a soon to be released documentary about the journey to find answers to undiagnosed medical problems. My guest is Katia Moritz, Ph.D, ABPP, who is the inspiration and driver of this amazing story.
Katia's story is both heartbreaking and inspiring. She has been searching for an answer to her sudden health decline after a simple and routine medical procedure. Since that day, over three years ago, she has suffered from multiple debilitating symptoms resulting in hospitalizations, ongoing tests, and visits to many specialists throughout the country. Throughout this time, she continues to try to maintain her energy to work, care for her family and keep her sights on finding answers.
Katia will tell her story and how the idea for the documentary evolved. She realized she was not alone. There were many people, young and old, worldwide in similar circumstances. And she needed to do something.
Katia is the Clinical Director of the NeuroBehavioral Institute and a Psychoeducational Liaison for Academic-Options. She is a licensed psychologist in the State of Florida. Dr Moritz is Board Certified in Cognitive and Behavioral Therapy.
Join Danna and Tiffany as they talk with Dana Trentini, also known as Hypothyroid Mom. She graduated in 1993 with an Honors Bachelor of Science degree in Neuroscience from the University of Toronto with High Distinction receiving multiple scholarships and prestigious awards. She also worked for several years as a high school science teacher in a specialized school for intellectually gifted students. At Columbia University in 2002, she obtained an M.A. in Organizational Psychology and an Ed.M. in Counseling Psychology. She was no stranger to scientific research so she used her science background and research skills to learn everything she could about her thyroid disease? HypothyroidMom.com was created in memory of the unborn baby she lost to hypothyroidism.
Check out a wonderfully important article by Dana on Thyroid Nation....Mental Disorder or Undiagnosed Hypothyroidism?
We want people to understand our "silent epidemic", but how honest, open minded and willing are we to hear about the plight of others with disability? Do we look for the similarities, or the differences in the issues we all face? Meg Perez, will speak of a genetic condition called William's syndrome, what it's meant in her life, & then the recent finding she has also suffered an undiagnosed brain injury. So many people who have had brain trauma go undiagnosed, yet the symptoms are lurking right there. We'll discuss the challenges of relationships, goal setting, and the obsticles involved, when you've had a diagnosis since birth.
Terry Monkaba, Exec Director of the Williams Syndrome Association, who also has a 29yr old son with the condition will be joining us. More at Williams-Syndrome.org
This show is a gathering place for anyone seeking recovery from the challenges of life on life's terms. I introduce topics, and survivor's share their experience, strength and hope. We discuss useful tools that have helped us lighten the load, of our journey through recovery.
More will be revealed! Tune in, stop in and call in. This is a "we" recovery program, because it is in the "we," that we find the new "me."
We focus on the four A's of Recovery: Awareness, Acceptance, Action and Adaptation. This is a place for survivor's striving to become thrivers.
The front half of show is a featured guest. to join us in the discussion. The second part of the show is Open Mic and some great Indy Music, sure to inspire!
Host is Kim Justus, author of In a Flash: Miracles Here and Beyond found at www.inaflash.org & "Like" at www.facebook.com/inaflash.org and ./braininjuryradio
For most of us, when we go to the doctor with symptoms, we are diagnosed and treated. Imagine going to the doctor and being told there were no answers as to why the symptoms were occurring. Then imagine, this is your child and all the specialists referred to have no answers. What if you were told this was a rare illness and no one knew how to diagnosis it? What would you do?
This is the story Heather Long is going to talk about on this week's show. One of Heather Long’s three children (Cal) passed away in 2006 at five years old to an undiagnosed disease. Heather was told that her son’s death was likely caused by a very rare metabolic disease, and she has since focused her energies on being an advocate for patients suffering from undiagnosed and rare diseases.
In 2008, Heather co-founded a nonprofit organization, U.R. Our Hope., that assists individuals and families who are on the journey of finding a diagnosis or are navigating through the health care system after a rare diagnosis. In 2011, Heather co-authored H.R. 2671- The CAL Undiagnosed Diseases Research and Collaboration Network Act, which was proposed in the 112th Congress and is scheduled to be re-introduced during the current 113th session. And recently, Heather proudly joined the Global Genes Advocacy Leadership Group.
Is Adrenal Exhaustion Causing Your Health Problems?
Millions of people suffer from undiagnosed fatigue, depression, food cravings, poor immune function, headaches and other unpleasant symptoms of declining health without knowing why. In today’s show, our Health Guru, Beverly Nadler, will tell you some fascinating facts about the importance of your adrenal glands. Many unexplained health problems are the result of worn-out adrenal glands. We know that these walnut sized glands above your kidneys release adrenalin and cortisol in response to stress, but they do far more than that. They produce 50 different hormones and are essential for our energy, stamina, sharp mind and healthy sex drive. When you suffer from adrenal fatigue, all of the above may be absent or greatly reduced. Join us today and learn how you can restore the health of your adrenal glands and regain your energy.
Michele Rosenthal CPC, NLP, CHt : Your Life After Trauma.
Founder of HealMyPTSD.com. Michelle Rosenthal is an award-winning PTSD blogger, best-selling author (Before the World Intruded), & popular keynote speaker of Post Traumatic Stress PTSD.
Michele's ground-breaking work has been featured in national media outlets including: The Ladies Home Journal, NBC, The Dennis Miller Show, Palm Beach Post.
As a trauma survivor herself, Michelle understands first-hand the complex struggle of battling PTSD. She suffered and went undiagnosed for over 25 years before launching a successful “healing rampage.” campaign.
"Stop living with the sensation that you are not who you used to be or could have been. Feel more calm, confident and in control of yourself, your world and your recovery because you know who you are and, more importantly, are actively creating who you most deeply want to be."
Connect with Deb: http://www.DebScott.com
Join me on Thursday, February 5th at 6pm EST. I'll chat with #1 New York Times, USA Today, and The Wall Street Journal bestselling author, Abbi Glines. Her Rosemary Beach, Sea Breeze, Vincent Boys series, and the Existence trilogy continue to excite young adult readers. Her upcoming novel, When I'm Gone: A Rosemary Beach Novel (The Rosemary Beach Series) will be released in April 2015. Readers will meet Mase Colt-Manning, a Texas heartthrob first introduced in Take a Chancewho comes to Rosemary Beach to stir things up!
I had an urge to fix all her problems. Which was stupid. She was doing fine without me. But something about those big eyes…
Mase Colt-Manning has always preferred his humble life as a Texas rancher to his birthright as the son of a legendary rock star. In fact, he rarely visits his father’s rarefied world in Rosemary Beach, especially if it means bunking at his vile half-sister Nan’s house—until one visit leads to a chance encounter with a young, gorgeous house maid who awakens him with her off-key but spirited imitation of a country music star…
Reese Ellis finally has her freedom. After escaping a lifetime of abuse from her parents and classmates for an undiagnosed learning disorder, she seizes the opportunity to be a house maid to some of the richest families in Rosemary Beach. But her job is in jeopardy when she causes an accident at the home of her most important client, Nan Dillon. When a hot, half-naked stranger with a cowboy’s swagger comes to her rescue, she’s intrigued—then afraid once he shows his own interest. Reese has never met a trustworthy man in her life. Will Mase be any different?
Krylyn Peters, “The Fear Whisperer,” is an author, speaker, coach, and singer/songwriter. She motivates, inspires, and entertains - always leaving people empowered with the practical tools they need to make positive changes.
Krylyn’s philosophy is that we all have a calling, which typically emerges from intense personal challenges. She has overcome her own challenges, being raised in a family torn apart by alcoholism, undiagnosed mental illness, abuse, neglect, and secrets.
Join Host Celeste S. Duckworth and Krylyn Peters have a conversation about how she helps individuals tame their fear and embrace their greatness...
Call In/SKYPE (646) 564 - 9897 to listen, comment or ask questions.
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in Self Help
Our Coaching Crew- Life Coaches: Shawn Marie Cichowski, Alethea Ball & August Schilz discuss Dr. Allen Frances article that examines the rush of newly invented condtions which s leaving the nation's children at risk and overmedicated. Please share your thoughts and listen in this Thursday September 4th at 9pm.
Welcome to another episode the Brain Injury Round Table. I am your host, Constance Miller, brain injury survivor of 32 years; author of the original brain injury owner's manual entitled From The Ashes. This innovative guidebook was featured on Super Bowl XXXIV. Miller is Managing Director of Brain Injury Resource Center, located on the Internet at http://www.headinjury.com. Also joining us is Tai Campbell, my invaluable contributor tireless community activist, and founder of Taken Back Our Community (TBOC) http://www.tbocnow.org. He is the survivor of an incredible history of childhood brain injuries. I'd like to thank: all our listeners for bringing our voices, to your home, or your mobile device wherever you are around the world. Additionally, I’d like to give a big thank you to this show’s sponsors: Martha Marcum, mother of a brain injury survivor and author of MARTHA'S FABLES and Gordon Johnson, attorney of http://www.TBILaw.com
Our guest tonight is Martha's daughter, Mia Dalene Marcum-McCoy, Her book Phenomenal Brain Power: from brain injury to brain awakening is an inspirational account of her journey to reclaim her life after a 2001 brain injury in a car vs bicycle collision. She recalls awakening to an altered sense of self and a need to fine meaning in the chaos that her orderly, purpose-driven life had become. Her dream-life took a bad turn on that fateful day in 2001. She was the epitome of the millennial woman; newly divorced, mother of two, bright well educated and well positioned to succeed in her career. An undiagnosed concussion turned her life upside down and turned it into a cruel caricature. Slowly and painfully she came to terms with the need to create a new dream, a new life and a new self. Phenomenal Brain Power is both a roadmap and journal of the trip of a lifetime.
Dr Michael Platt has published a book, "Adrenaline Dominance: A Revolutionary Approach to Wellness". He examines the role that adrenaline may plan in a number of conditions that are quite often misunderstood, including ADHD, Irritable bowel syndrome, PTSD and Autism. He offers dietary ways to control the over-production of adrenaline.
With a background in diseases that cause pheochromocytoma -- a tumor that causes over-production of adrenaline -- Joyce is eager to discuss with him how to differentiate between pheos and the kind of medically treatable adrenaline dominance that he discusses in his book. Pheos are difficult to diagnose, and they notoriously do not respond to medical treatment. Undiagnosed pheos can be life-threatening if they are not diagnosed and removed, especially during pregnancy. Some pheos can even metastasize. If you have a pheo, it is extremely important to diagnose and remove this dangerous tumor. Pheos are also sometimes called paragangliomas, especially when they occur in the region of the chest or neck. They can occur anywhere from the earlobe to the groin, on either side of the body, along the sympathetic nervous system.
Please listen and participate in this discussion.
For more information on pheochromocytoma and paraganglioma, please see
There are more than 20 tiny genetic flaws that can increase one's chance of having a pheo or para. If you know that any of these conditions runs in your family, be sure to get tested for the presence of one of these tumors before embarking on Dr. Platt's treatments. It will be easier to diagnose the pheo-para before this treatment.
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