My daughter began to experiencing seizures in 2013. Navigating what Epilepsy is and what to do with it has been, frightening, confusing, overwhelming, and down right upsetting in so many ways both for our daughter and us as caregivers.
Those we would think we could rely on to help us, medical profession and public schools, OMG.
I have found fantastic support groups and facebook groups that have lent support and guidance where none was to be found. Thank you.
I am hoping through this program to open up another line of communication for those with Epilepsy and those who are caregivers. This will be from your perspectives not doctors and pharmaceutical companies.
How is it possible that something that has been around since the beginning of time is so misunderstood and unknown. Maybe together we can find some answers and support.
Let's talk Epilepsy.
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