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Powerful Patient

Powerful Patient

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Do you feel helpless in the face of "the system?" This show is to help you learn how to take control and steer your way to health. Hear how others have met these challenges and overcome them. Learn how you can do so too. This program is a forum to share your experiences, ask your questions, and learn how to create and manage your health care team. Make the healthcare system work for you!

On-Demand Episodes

Powerful Patient

When doctors disagree with each other about what to do for our care, we get nervous and confused. When government or professional agencies disagree in the press, we get even more confused. Recently there have been conflicting... more
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Powerful Patient

Fresh back from the VHL Symposium in Houston, Joyce Graff and guests talk about the highlights of the conference, and what they gained by going. Von HIppel-Lindau disease is a genetic cancer syndrome. The VHL gene plays a role... more
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Powerful Patient

Joyce speaks with people who attended the VHL Conference in Houston last June. For some, it was their first such meeting. In addition to the expense and time commitment of going to a conference about your disease, there are... more
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Powerful Patient

Tarek McCarthy, an award-winning filmmaker, will be reaching out to share his insights into living with a rare disease. Diagnosed with VHL in 2004, he underwent multiple surgeries to remove tumors from his brain in addition to the removal of... more
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Powerful Patient

Israel C. "Izzy" Kalman has been working as a school psychologist and psychotherapist since 1978. For over two decades, he has been intensively helping victims of bullying, initially children and after a few years, adults as well.... more
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Powerful Patient

Elizabeth Batson's new book *I Have Needs Too! Supporting the Child Whose Sibling Has Special Needs* combines quotes and drawings from kids whose siblings have special needs with parenting help from a professional. The book... more
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Powerful Patient

Lisa Nagy spent years with doctors trying to figure out what was wrong with her. Eventually she realized that the doctors were not going to wave a magic wand and cure her, that she needed to take some action herself. She cleaned up her... more
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Powerful Patient

A recent University of North Carolina study showed that the average college football player receives over 300 blows to the head in four seasons. In the pros it is even higher. Autopsy studies show that NFL players with early dememtia... more
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Powerful Patient

Are you sinking in the Quicksand of Pain, are you stranded in the Mountains of Misery or simply lost in a Forest of Symptoms? After a disappointing trip to the Mayo Clinic, author Alan E. Smith admits, "I suddenly became very... more
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Powerful Patient

For Denise DeSimone, cancer was a chance to live a better, more fulfilling life.An active and healthy 49-year-old, DeSimone suddenly faced the threat of having only three months to live when she was diagnosed with stage IV throat and... more
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