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Powerful Patient

Powerful Patient

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Do you feel helpless in the face of "the system?" This show is to help you learn how to take control and steer your way to health. Hear how others have met these challenges and overcome them. Learn how you can do so too. This program is a forum to share your experiences, ask your questions, and learn how to create and manage your health care team. Make the healthcare system work for you!

On-Demand Episodes

Diane Tomaz of the Massachusetts Adoption Resources Exchange (MARE) talks about adoption and the needs of the children waiting in foster care. Many of these children have special needs. Addy is a good example. Addy is a 4-year-old... more

There are many challenges common to all rare diseases: 1. How to get a correct diagnosis? 2. How to find doctors who understand the condition and can provide therapeutic help. 3. How to manage day to day, making choices and getting... more

Robin and Joyce speak with Lesley Bennett, state coordinator for the National Organization for Rare Disorders (NORD) in Connecticut, about the importance of the voice of the "consumer" in healthcare as in retail or other "marketing"... more

What happens at a patient support conference? Is it worthwhile to go, or will it be stressful? Carla talks with Robin and Joyce about her own recent experience. Carla applied to the New England Regional Genetics Group... more

The annual Kidney Cancer Symposium was held this year in Miami, Florida. It was chaired by Dr. Toni Choueiri of Dana-Farber/Harvard Cancer Institute in Boston, and contained a wealth of information for physicians, both urologists... more

David Houle and Jonathan Fleece are co-authors of the book The New Health Age: The Future of Health Care in America. Three years ago they co-authored a provocative short blog post in KevinMD, predicting that by 2020 one-third of... more

Alison J Kay, PhD, speaks with Robin and Joyce about the melding of Asian and Western philosophies and medical cultures that she feels optimizes our ability to live fully in today's busy world. Have you been feeling like life has become... more

Dr..Paula C. Goldenberg, a geneticist at Massachusetts General Hospital in Boston, has been holding a new kind of "clinic" -- online, in Facebook -- since last July. In a mere four months she has gathered 2200 followers worldwide. Dr.... more

Joyce Graff recently attended the Second Global Summit on Radiological quality and Safety (GSRQS). Fifty-two leaders of radiological services from countries on five continents participated in the meeting. Joyce was the sole patient... more

Deb Maskens was diagnosed at the age of 14 with papillary renal cell carcinoma. Now with adult children of her own, she has been living most of her life on one clinical trial or another, working to control the growth of tumors and to maintain... more
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