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Noonan Syndrome, RASopathies Foundation

  • Broadcast in Family
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Julie N. Jancius is the mom of Ellie, born with Noonan Syndrome. President/CEO of RASopathies Foundation and Noonan Syndrome Foundation branch. Julie discusses the rollercoaster journey of Noonan Syndrome and the gifts of RASopathies Foundation.

http://www.teamrasopathies.org

http://www.teamnoonan.org

RASopathies Foundation (803)522-3110

 

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