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child care fusion

Child Care Fusion


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"Let's dream a new child care society!" We talk with parents of children with rare diseases for awareness to parents, childcare providers and doctors. Supported by: Talk, Walk & Learn Center/SHIFTS Night Care Center 24/7 learning care services- childcare music by Massimo DeAngelis "Child Care Mix"

On-Demand Episodes

James Dickniete returns to further discuss Cri Du Chat Syndrome in his family, some of the organizations to contact and upcoming events. International Cri Du... more

Phyllis Minga "Maw Maw" is a wife, mother, grandmother and resident of Carrollton, MS. Phyllis has fought for many things in her life, her grandson, Kaleb, in one of the greater fights. Pediatric heart surgery, Autism/Asperger... more

Julie N. Jancius is the mom of Ellie, born with Noonan Syndrome. President/CEO of RASopathies Foundation and Noonan Syndrome Foundation branch. Julie discusses the rollercoaster journey of Noonan Syndrome and the gifts of... more

Amanda Williams is a wife, mom, hairstylist, advocate for their son, Jayden, who has Angelman Syndrome, and resident of Ponchatoula, LA. Angleman Syndrome Foundation, Inc.... more

Vicki Ross- wife, SAHM of 3, KD advocate discusses and consultant for Thirty One Gifts. Colson, the youngest, is a KD survivor. Vicki will tell us terms as coronary aneurysms, GIANTS, true angina, true heart attack, beta blocker, blood... more

Holli Meehan- wife, mother of a 4 year old Kawasaki Disease Survivor, advocate of Kawasaki Disease. 1000 blood donors create 1 treatment of IVIG which is crucial for children with Kawasaki Disease.

Leah Bakshy Ruiz is a mom of a daughter- 2 time Kawasaki Disease, advocate of KD, maintains a blog- and runs... more

James Dickniete, husband, parent, sibling, son, resident of Missouri. He, his son and 4 other members in his family have Cri Du Chat. James is also an advocate for children with special needs. He is employed in the electronics industry.

Linda Danielle is an advocate of Kawasaki Disease, above that a wife and mom of 4, the youngest- Johnny, Jr has Kawasaki Disease. She tells of her family's journey with Kawasaki Disease- symptoms, doctors and encouragment.

Scarlett Clay resides in Austin, TX. She is a wife and mother of 4, the youngest- Knox has Cockayne Syndrome. She has a blog 'Art is Medicine' Cockayne Syndrome support can be found on... more
Show Extras