Aligning Incentives to Share Clinical Data: DPharm Podcast Series #1

DPharm Podcast Series #1

Dr  Zak Kohane, Chair of the Department of Biomedical Informatics, Harvard Medical School spoke at the DPharm conference in 2017 where he talked about how to align incentives to share clinical data. He reports on the outcome of the SPRINT Challenge, which is like the “poster child” of data sharing. More specifically:

• Why are we not sharing data from clinical trials?
• What did the trialists say about data sharing?
• Patients’ perspective?
• Did having more people reviewing the data improve its quality and usefulness?
• What did we learn about aligning incentives to share clinical data?
• How can we create a proper framework for sharing data?
• How can we promote opportunities to democratize access to data that can go beyond a trial’s primary outcome findings?

The next DPharm conference is September 25-26 in Boston. DPharm is the annual event that reports on innovation and disruptive innovation to advance clinical trials. For more information, visit www.theconferenceforum.org.

Speaker: Isaac (Zak) Kohane, MD, PhD, Chair of the Department of Biomedical Informatics, Harvard Medical School

Producer: Valerie Bowling, Executive Director, DPharm