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Encore Presentation of "Living with Eisenmenger's Syndrome"

  • Broadcast in Health
Heart to Heart with Anna

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Today's encore presentation features a very special "Heart to Heart with Anna" Guest, Carolyn Robinson. Carolyn was on the podcast in both Season 3 and Season 7 -- to talk about Eisenmenger's Syndrome in Season 3 and in Season 7 to address what it was like to live with a congenital heart defect in Canada. Much to our dismay, Carolyn passed away in October 2016. This encore presentation is in memory of Carolyn, a gentle spirit who took great pains to be a strong advocate for both congenital heart defects and Eisenmenger's Syndrome (a.k.a. pulmonary hypertension).

Have you ever wondered what Eisenmenger's Syndrome is? Who gets it? What are the symptoms? How does it affect a person's body from childhood to adulthood? What changes occur with the aging survivor?

Carolyn Robinson, a long-time Eisenmenger Syndrome Survivor will answer these questions and more as she details her life story of being diagnosed with this condition and surviving long enough to become a grandmother! Carolyn is a published author. She wrote an essay entitled "Leading the Troops" for The Heart of a Mother, which was an anthology of stories by women affected by congenital heart defects. Carolyn's essay was in the Mothers with Congenital Heart Defects chapter and detailed her efforts to become a mother.

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