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Great news! National Seizure Disorders Foundation is back on air bringing you the information you want and need to know about our personal expereinces with seizure disorder while enjoying the journey to positive seizure management.
Join NSDF this week as our Founder and host of Seize the Day, Terrific Tonya Heathco, brings you her expereince as a seizure survivor, SUDEP survivor, and now VNS therapy survivor. Her words will insprire and empower you to move forward in your journey of positive seizure management whether you are a caregiver or seizure survivor.
Are you facing VNS(Vagus Nerve Stimulator) Therapy? Have you a VNS expereince to share? Call in during the show and make your thoughts known. NSDF is here to share with you because YOU matter.
Join us LIVE and feel free to ask questions:1 (646) 721-9207. We want to hear from YOU!
Special gratitude goes to our STAR sponsor, The Advocate of Dickson TN (http://theadvocate4you.com/) as they provide the energy that brings our message to your ear every week.
NSDF is also grateful for VNS therapy offered to Terrific Tonya Heathco by Cyberonics (http://us.cyberonics.com/)
Remember, it's best to share so that others may become aware. NSDF asks you to share this episode and our website http://nsdf.us so that everyone have an opportunity to increase awareness & give so that others may live a higher quality of daily life.
Staff of NSDF are not medical professionals. We ask that you discuss any medical suggestions with you medical professional. Should you need assistance in finding a medical professional, please let us know.
When living with seizure disorder, allow National Seizure Disorders Foundation to walk with you during your journey as together we bring order to seizure disorder in your life and the lives of many. With NSDF you are never alone you have the power to be a survivor.
Have you heard of VNS Therapy/surgery?
Have you discussed this therapy with your doctor?
What are your hopes and fears surrounding VNS Therapy?
Together lets address these questions.
Join NSDF tonight as we Seize the Day while facing VNS (Vagus Nerve Stimulator) Surgery. Our Founder, Tonya Heathco will discuss her own personal thoughts and feelings on facing VNS surgery, what she expects of the surgery itself and what she expects the outcome of the surgery will have on her journey with seizures and her overall life.
Join us LIVE and feel free to ask questions: 1 (646) 721-9207. We want to hear from YOU!
Remember, it's best to share so that others may become aware. NSDF asks you to share this episode and our website http://nsdf.us so that everyone have an opportunity to give so that others may live a higer quality of daily life.
The staff of NSDF are not medical professionals. We ask that you discuss any medical suggestions with you medical professional. Should you need assistance, please let us know.
Things I can't stress enough since beginning this journey. Find yourself an Epileptologist and/or Epilepsy Center for treatment. Second, go to Epilepsy Foundation and EpilepsyU websites/facebook for support, information and more.
These two things are so critical your sanity during a very overwhelming time in your life. After my rant, I visit with some hot topics on these two websites. Great info friends, great info.
Mark your calendar to call in next week and share your story.
The intention of this forum is to share information. For as long as epilepsy has been around it is amazing how little is known, understood and shared. I have found the best places for information is through the Epilepsy Foundation's chat rooms, Epilepsy Facebook pages and local support groups. It is my hopes that this will become another place to support those who have or lend support to those with epilepsy.
I am a newbie to this scene with my teenage daughter in her first year with epilepsy. I am shocked at how difficult it has been to navigate the medical and educational systems. Systems that should be supportive to this condition.
So let's talk about epilepsy and share information that can help us all move forward.
Thank you to all who post information in forums. Your wisdom and sharing has greatly benefited our family in coming to better understand epilepsy and all that goes with it.
with love and appreciation,
It's time to Seize the Day!
Join NSDF for an hour of remembering the good actions of seizure disorder awareness warriors. Learn from thier example and become inspired to lead your own awareness campaign for 2014. Who knows, YOU may be on our list next year!
Tributes in this hour include&are not limited to the amazing actions of :
Eric Miller - Candlelight Concerts & Purple Kilimanjaro
Dr Diane Stein & her assistant Brad - Epilepsy Awareness Day at Disneyland
Glenn Fenster - cross country marathon runner & cyclist
UGOODDOG -placing seizure service, alert, and VNS Swipe canines for NSDF
Family and Friends of #AJO Forever creating global awareness for Epilepsy and SUDEP
Monica Collins - TG Bears- Epilepsy awareness bundled in loving softness
PuraVida Bracelets - raising awareness through word&product
Have you a question about NSDF, Epilepsy, seizures, or raising awareness? Please call in to speak with the host 1(646) 721-9207 or connect using the links below.
Join us every week, same day- same time- same channel and be good to yourself throughout your week. The staff of National Seizure Disorders Foundation appreciates you!
Connect with NSDF: Website , FaceBook , Twitter
Sponsor: The Advocate
In the Studio, my guest is STEPHANIE ALSTON-NERO, a poet-healer and certified energy medicine practitioner in private practice in Harlem and Stone Feather Retreat in the Catskill Mountains.
Our topic focuses on how to tap into our creative energy and how to channel it through our writing practice.
In her mission to relieve pain and suffering, she teaches EFT energy medicine to visiting nurses and hospice workers at VNS/NY. She also facilitates ongoing healing workshops nationally and abroad and is a member of Sisters of Honua, a global circle of healers and WisdomKeepers of many traditions.
She studied shamanism with Malidoma Patrice Somé, Ph.D., elder shaman and author of The Healing Wisdom of Africa and Of Water and the Spirit. He has written: “Stephanie is a descendant of shamanic power, grounded in the very countenance where ancestral medicine started. She is healing the past to stabilize the present and future with more light.”
She also received extensive shamanic training from Sandra Ingerman (Santa Fe). A performing poet who has written two books of poetry, Kiss Me on My Face of God and In Wild Violet Shrine (Evolutionary Girls Press, June ’09), her latest poetry DVD is Return to Beauty. Stephanie is at work on a new book, Sacred Acts of Healing: Transformation Stories from the Village of Harlem. Visit HealingHistory.googlepages.com.
In this week's episode of Epilepsy.com's Hallway Conversations, Dr. Joseph Sirven, Professor of Neurology at Mayo Clinic Arizona and Editor-in-Chief of Epilepsy.com/Professionals, interviews Dennis Dlugos, MD, associate Prof of Neurology and Pediatrics, U of Pennsylvania School of Medicine, Director, Pediatric Regional Epilepsy Program, The Children's Hospital of Philadelphia about weighing different treatment options (when to try another drug vs surgery eval vs keto diet vs VNS vs tolerating seizures) in kids with epilepsy. This is a live taping with no questions to be answered live.
Dr. Joe Sirven, Editor-in-Chief of epilepsy.com/professionals interviews Epilepsy Therapy Project (ETP) Chairman Warren Lammert and President Joyce Cramer about new therapies for epilepsy and "Pipeline Day" at the AED Trials X Conference. Pipeline Day focuses on new therapies being researched and worked on. ETP's mission is to advance new treatments for people living with epilepsy by fast-tracking great ideas into treatments to reach people as fast as possible.
Our practice offers outstanding and compassionate care for patients in north Texas. We are located close to and easily accessible from Allen, Celina, Denton, Frisco, Little Elm, Mckinney, Plano, and Prosper areas. We are one of the best rated and reviewed neurologists in Texas.
Headache disorders,Migraine,Cluster headaches,Neck Pain,Back Pain,Chronic pain,Memory loss,Dementia,Epilepsy and Seizures,Episodes of confusion,Loss of consciousness,Movement disorders,Essential tremor,Parkinson's disease,Dystonia,Neuro-Immunological disorders,MS (Multiple Sclerosis),Neurosarcoidosis,Sleep Disorders,Narcolepsy,Sleep apnea,Neuro-Muscular disorders,Muscular dystrophy,Myasthenia Gravis,Neuropathy,Numbness/Tingling,Stroke / TIA,‹Weakness,Dizziness,Vertigo,TBI, Concussion
Nerve Block for pain, headache,Trigger point injection,Botox for Migraine,Management of VNS, Deep Brain Stimulation (DBS) management,Botox for dystonia,EEG,24 Hour video EEG
Sunil Thummala, MD
Board Certified Neurologist