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  • 01:01

    Powerful Patient meets Youth Services

    in Health

    Father Donald E. Mowery is the retired leader of Youth Services globally.  He has had a radio show, Talk it Out with Father Don, on WHBQ radio in Memphis, Tennessee, for the past 45 years.  This month Joyce Graff appeared on his show.  Joyce and Father Don have a great conversation about Powerful Patient and its mission, and also about Youth Services and its mission, highlighting many parallels.  In both cases, they work to empower people to work through the issues they cannot change and tackle constructively the things they can change.

    Learn more about Father Don.  A new book, Spiritual Networking, by Darrell B. Uselton and David Yawn, recounts the history of Youth Services in Memphis and worldwide.


    in Health

    September is Prostate Cancer Awareness month and we are talking to patient advocates to get a better insight into their roles in major clinical trial groups. Mike Scott is talking to Tony Crispino, patient advocate to the Genitourinary Cancer Section of the Southwest Oncology Group (SWOG) and a long time prostate cancer advocate on his role as an advocate, and address matters like training available, learning about evidence-based medicine, and funding of clinical trials. Tony will also explore the role of SWOG in recent major trials (like the CHAARTED trial and pivotal trials for enzalutamide, radium-223, abiraterone acetate, etc.) Mike Scott is joined by patient advocates Paul Carpenter, Jan Manarite, and Allen Edel.



  • 00:31

    Empowered Patient Coalition

    in Health

    Mike and Joyce speak with Dr. Julia Hallisy about The Empowered Patient Coalition: providing healthcare improvement and patient safety tools directly to consumers.


    About Dr. Hallisy:

    Dr. Julia Hallisy obtained her BS in Biological Science from the University of San Francisco in 1984 and a second Bachelor’s degree from the University of California in Dental Sciences. In 1988, Dr. Hallisy received her Doctorate in Dental Surgery from the University of California at San Francisco School of Dentistry. Since that time, she has been a full-time practicing San Francisco dentist.

    Her second child, Katherine Eileen, was diagnosed at five months of age with bilateral retinoblastoma. Dealing with her daughter’s life-threatening diagnosis, the many recurrences of cancer, and the subsequent treatments for the malignant and aggressive tumors marked the beginning an almost 20-year involvement in our healthcare system. The unique combination of her scientific training, her work as a healthcare provider, and guiding a child through a chronic illness has afforded her invaluable insight as an advocate for patients.
    Dr. Hallisy began to research the topic of patient safety in 1998. She has lobbied for health care reform in Washington, DC with Consumer’s Union.

    Dr. Hallisy is committed to and passionate about the subjects of patient safety, health care reform and medical error reduction. She is the founder and president of The Empowered Patient Coalition.

    Dr. Hallisy was born and raised in San Francisco, where she lives with her husband, John Hallisy, and their two sons, Daniel and Kevin. The Hallisy’s ten-year old daughter, Kate, lost her life-long battle with cancer in February 2000.

  • 01:58

    Marian Hollingsworth: Medical Abuse of My Father & becoming a patient advocate

    in Parents

    Hosted by Marti Oakley & Debbie Dahmer

    My father, Keith Blair, went into the hospital in July of 2009 for diagnosis of back pain. Without our knowledge or consent, he was given a cocktail of Risperdal, Haldol, Ativan, Tylenol with codeine, and Morphine. When I asked the doctor about this, he said it was just "hospital delirium,"  Sent to a  nursing home, my father was given more antipsychotic drugs, along with double doses of AmbienCR, the long acting version of the drug. He ended up with the bad side effects of these black box drugs such as heart trouble, severe dehydration and kidney trouble, and sudden diabetes. He also contracted a MRSA eye infection which spread to his lungs, fell 7 times in 12 days and developed a bedsore. (He was only in the nursing home 18 days.) He ended up a second hospital due to heart and kidney problems, where the same nursing home doctor treated him.) At the second hospital, he was given daily Risperdal, and we were told to prepare for his death. When I went through the records later, I discovered that a cardiologist said he was improving and that he could be released to the nursing home in a few days.

    2. How to get ALL the records.

    3. Your rights in a hospital or nursing home as a patient or family member. Know the codes in your state so you can use them. if needed, if facilities try to violate these rights.

    3. Dealing with the health department for complaints. Your rights in a complaint. The complaint in my father's case resulted in a new policy from the health department, AFL 1108. It mandates that nursing homes must verify that patients on antipsychotic drugs being transferred from hospitals have informed consent forms in their records, and if not, that informed consent must be obtained before the drugs can be given.

    4. Dealing with the medical board for complaints.


  • Population Health and the Patient Experience: A Perfect Pair

    in Health

    Population health has arrived on the healthcare scene, and if we’re smart, we’ll make sure it’s here to stay. Susan Marks from Amati Health will talk with Singola Consulting about why it’s smart to move towards population health, what an effective strategy looks like, and how it benefits both healthcare organizations and the patient experience.

  • 00:31

    Our Diagnostic Odyssey

    in Health

    Patricia Weltin of Rhode Island and her two daughters have had a difficult time achieving an accurate diagnosis for her daughters' medical issue.

    An accurate diagnosis is essential before a helpful treatment plan can be devised. Without an accurate diagnosis, any treatment attempted is a shot in the dark. Well-meaning medical professionals may make educated guesses as to how to proceed, and often that instinct is all that exists to guide us. However, with advances in medical diagnostics and genetic testing, there are new ways to pinpoint the underlying problem.

    Joyce and Robin speak with Patty about this one journey and what she has learned from this experience that might be helpful to the next family going through such a process.

    See also http://rarediseaseunited.org/

  • Can Online Patient Interaction be HIPAA Compliant?

    in Health

    As more and more patients are turning to the Internet to conduct a consultation for aesthetic surgery, the need for total patient privacy and HIPAA compliancy has never been greater. This interview with San Francisco board-certified plastic surgeon, Dr. Scott Mosser, explains the importance of HIPAA compliancy and what steps an aesthetic practitioner can take to be compliant. Dr. Mosser utilizes AestheticLink, an integrated software solution that is HIPAA compliant and endorsed by leading malpractice insurance companies. With a busy Bay Area practice, Dr. Mosser uses AestheticLink for a multitude of purposes including virtual consulting, patient tracking, inventory control and marketing. His philosophy of improvement through plastic surgery happens through establishing harmonty, not by manipulating a patient's fundamental appearance. Enhancing people’s lives and witnessing positive changes in self confidence are key reasons Dr. Mosser chose plastic surgery as his profession, and are the reasons that he loves performing plastic surgery everyday. Patient privacy is important to Dr. Mosser. Learn more at www.drmosser.com.

  • 00:54

    #31 Maggie Hadleigh-West Filmmaker Talks Patient Advocates & Sick To Death Movie

    in Health

    Join myself, Danna and my co-host, Tiffany Mladinich as we talk with special guest Maggie Hadleigh-West thyroid patient advocate, filmmaker, producer and actress. She'll discuss patient advocated taking on the medical community in her upcoming film Sick To Death. Check out her story on Thyroid Nation, here.

    It's going to be a wonderfully, informative and fun show! Join us! Also, please check out our Radio Show Facebook Group, Hashi's & Graves Thyroid Nation RADIO, where we share updated guest info, answer questions, ask questions and help empower each other.



  • 01:03

    Big Medicine, Big Profits, Poor Patient with Elaina George, MD

    in Politics

    We are honored that Dr. Elaina George, practicing Otolaryngologist, has agreed to return to our show to outline the problem with growing government involvement in our healthcare system and offers solutions as to what can be done to restore the traditional doctor/patient relationship.  Dr. George presents her case in her new book "Big Medicine: The Cost of Corporate Control and How Doctors and Patients Working Together Can Rebuild a Better System".   Listen in and call in with your questions, or comments on this critical issue 646-652-4620.  Look forward to hearing from you. 

  • 00:32

    Plugging the Gaps in Health Care

    in Health

    In the United States we are privileged to have some of the best medical care facilities in the world, and some of the most talented physicians.  But not everyone in the United States is able to access these services.  What we are working to improve through the Affordable Care Act (ACA, sometimes referred to as Obamacare) is access to that care, and moving from a system that focuses on fixing medical problems, to a system and a mindset that focuses on PREVENTING medical problems.

    Memphis, Tennessee, is an interesting case in point.  In Memphis, some 20% of the population has incomes below the poverty line, and a very high percentage among the "working poor."  Some qualify for Medicaid, but many do not.  People who are uninsured or "under-insured" often find themselves in need of medical care that they cannot afford.  One serious illness or automobile accident can easily bankrupt the household.

    Church Health Center has worked for many years to help fill the gaps in health care in Memphis.  Robin and Joyce speak with Jeff Hulett of Church Health Center about their work.  With the ACA their role is changing, but their work is by no means done.  See more at <a href="http://churchhealthcenter.org">http://churchhealthcenter.org</a>

  • 00:31

    Reducing Infant Mortality in the United States

    in Health

    What can we do to lower the incidence of infant deaths? Joyce and Robin speak with Dr. Robert Ford, a retired obstetrician/gynecologist (OB/GYN) from West Memphis, Arkansas, now living in Memphis, Tennessee. Dr. Ford shares his insights into this problem, which is highest in the Southern states.

    Unfortunately, about 24,000 infants died in the United States in 2011. The loss of a baby remains a sad reality for many families and takes a serious toll on the health and well-being of families, as well as the nation.

    The death of a baby before his or her first birthday is called infant mortality. The infant mortality rate is an estimate of the number of infant deaths for every 1,000 live births. This rate is often used as an indicator to measure the health and well-being of a nation, because factors affecting the health of entire populations can also impact the mortality rate of infants. There are obvious differences in infant mortality by age, race, and ethnicity; for instance, the mortality rate for non-Hispanic black infants is more than twice that of non-Hispanic white infants.

    Fortunately, most newborns grow and thrive. However, for every 1,000 babies that are born, six die during their first year. Most of these babies die because they are—

    Born with a serious birth defect
    Born too small and too early (i.e., preterm birth; birth before 37 weeks gestation).
    Victims of Sudden Infant Death Syndrome (SIDS).
    Affected by maternal complications of pregnancy.
    Victims of injuries (e.g., suffocation).

    These top five leading causes of infant mortality together account for 58% of all infant deaths in the United States in 2011.

    Infant mortality rate for children in the poorest 20% urban households is about twice as high as that among children in the richest 20% urban households, globally.

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