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Father Donald E. Mowery is the retired leader of Youth Services globally. He has had a radio show, Talk it Out with Father Don, on WHBQ radio in Memphis, Tennessee, for the past 45 years. This month Joyce Graff appeared on his show. Joyce and Father Don have a great conversation about Powerful Patient and its mission, and also about Youth Services and its mission, highlighting many parallels. In both cases, they work to empower people to work through the issues they cannot change and tackle constructively the things they can change.
Learn more about Father Don. A new book, Spiritual Networking, by Darrell B. Uselton and David Yawn, recounts the history of Youth Services in Memphis and worldwide.
Karen Mercereau is a nationally recognized visionary leader in healthcare, known for her ability to transcend challenges, and create opportunity from complexity. This was the quality behind her founding of RN Patient Advocates in 2002, for which she received a Purpose Prize Fellowship. A clinical RN for 45 years in diverse intensive care as well as community health settings, Karen was also integral in developing the first hospice in Tucson, AZ. Recognizing the dearth of public health programs available in the AIDS community in the late 1980’s, she chaired a countywide consortium to develop AIDs relief programs in Tampa Bay. Karen has also been instrumental in the design and implementation of hospital and health care systems, lecturing nationally on their wider applications. Currently, Karen heads the RN Patient Advocate Learning Intensive in association with the University of Arizona College of Nursing. This immersion learning program for qualified clinical RNs prepares them for the development of their own practices as independent RN Patient Advocates (iRNPAs).
Karen is also the leader of the RN Patient Advocate Group Practice in Southern Arizona comprised of independent RN Patient Advocates who provide both individual RN Patient Advocate services as well as community health literacy programs. She is the President of Health Education and Advocacy Leaders, Inc., a foundation she started to support community health literacy programs.
Mike and Joyce speak with Dr. Julia Hallisy about The Empowered Patient Coalition: providing healthcare improvement and patient safety tools directly to consumers.
About Dr. Hallisy:
Dr. Julia Hallisy obtained her BS in Biological Science from the University of San Francisco in 1984 and a second Bachelor’s degree from the University of California in Dental Sciences. In 1988, Dr. Hallisy received her Doctorate in Dental Surgery from the University of California at San Francisco School of Dentistry. Since that time, she has been a full-time practicing San Francisco dentist.
Her second child, Katherine Eileen, was diagnosed at five months of age with bilateral retinoblastoma. Dealing with her daughter’s life-threatening diagnosis, the many recurrences of cancer, and the subsequent treatments for the malignant and aggressive tumors marked the beginning an almost 20-year involvement in our healthcare system. The unique combination of her scientific training, her work as a healthcare provider, and guiding a child through a chronic illness has afforded her invaluable insight as an advocate for patients.
Dr. Hallisy began to research the topic of patient safety in 1998. She has lobbied for health care reform in Washington, DC with Consumer’s Union.
Dr. Hallisy is committed to and passionate about the subjects of patient safety, health care reform and medical error reduction. She is the founder and president of The Empowered Patient Coalition.
Dr. Hallisy was born and raised in San Francisco, where she lives with her husband, John Hallisy, and their two sons, Daniel and Kevin. The Hallisy’s ten-year old daughter, Kate, lost her life-long battle with cancer in February 2000.
In the world of Pit Bull Advocacy, we all want the same thing. The fair and equal treatments of the dogs we know and love as Pit Bull. One thing has been clear in my 12 years as an owner, lover, and advocate, our methods and views are not always the same, and we can, and we do, clash. In fighting, boasting, egos, and more. What can we do as advocates to look past those differences, avoid such clashes and do away with the egos involved, including our own?
Join Dogfather and Joe on our 1st show of 2015 as we discuss this and more. We welcome your calls with comments and questions. Phone lines open at the top of the show. 347-838-8615
Input, Solutions, Culture
Pharmaguy interviews Anne C. Beal, MD, MPH, Chief Patient Officer, Sanofi, and Melva T. Covington, MPH, MBA., PhD, Project Leader, Research and Develooment, Sanofi. They talk about their roles in bringing the patient perspective into Sanofi's work to advance Sanofi's ability to deliver health care solutions that matter most to patients and those who care for them.
Questions/Topics of Discussion
How do you define "Patient-Centricity?"
Tell us more about the three pillars of Sanofi's Patient-Centric Strategy. How do you get patients' input? Do you have any patient advocates on your team who are not physicians but who have worked extensively with patients?
Are we talking only about patient-centricity in the context of research & development? What about corporate and marketing communications?
What's the most difficult hurdle for pharma to overcome to be truly patient-centric?
Why did Sanofi create the role of "Chief Patient Officer?" How is it different from "Chief Medical Officer?" What do you do as Sanofi's Chief Patient Officer? Can you relate a case study which demonstrates how you implemented your strategy?
What other pharmaceutical companies have Chief Patient Officers? Do they all have similar roles? Will all pharma companies follow?
Joyce and Mike speak with Georgia Hurst as part of Lynch Syndrome Awareness Week.
Georgia Hurst is a patient advocate for those with Lynch syndrome. She is the founder of the website and blog: <a href="http://ihavelynchsyndrome.com">ihavelynchsyndrome.com</a>. She frequently writes about the emotional aspects of having Lynch syndrome, and writes for various websites and journals in order to create awareness amongst the global medical community about this hereditary cancer syndrome. Georgia is a wife and mother, and loves espresso, books, and being bossed around by her adorable dog named Sid.
What is Lynch syndrome? We will learn more from Georgia, or you can read about it on her website, or in this article from <a href="http://http://www.curetoday.com/community/georgia-hurst/2015/02/i-have-lynch-syndrome">www.curetoday.com</a>
Georgia noticed that there were several people in her family who had cancer at early ages, and several with the same cancer. This can indicate that there is something genetic predisposing family members to cancer. She delved deeper, got to a diagnosis, and kept asking questions, finding out how to protect herself and others in her family from the worst consequences of this condition.
Hear her remarkable story, the path she followed in doing her own research, and the partnerships she has developed with medical professionals to help her make progress for herself and others.
Sallie O. Elkordy, Host of "Public Advocate" http://tinyurl.com/VaccineFreeNYC
Mike Lawing and Andy Derr have been living with kidney cancer for years. Both of them have learned not to knuckle under to a difficult diagnosis, but to challenge themselves to live WITH it, maintain their quality of life, and keep the nastiest effects of cancer at bay.
It's not easy. But today there are better tools for challenging kidney cancer than ever before. Working closely with their doctors, they have discovered strategies -- medical, mental, and spiritual -- that have helped them keep their heads high and their spirits strong and at the same time keeping cancer in the background of their lives.
Mike, Andy, and Joyce all attended the Kidney Cancer Symposium sponsored by the Kidney Cancer association in October 2014, and prepared a report in patient-approachable language to share with other patients and their families the amazing progress reported at the symposium. Mike did the bulk of the work -- the concept, the layout, and pictures, the editing -- and Andy and Joyce contributed articles.
You will want to hear this conversation!
Castle Bones Radio (CBR)
Wednesday, March 18, 2015
9 PM ET/ 6 PM PT
CBR Radio Spotlight Interview with RN Margaret Part 2 – 911 first responder
Castle Season 7 #17” Hong Kong Hustle” discussion.
Castle and Bones news, ratings and spoilers.
Call in to speak with the host
Come chat with us and join in the fun.
All photos and audio clips used on the broadcast copyright ABC, Fox, RN Margaret and host PamfromCalif
BOB DARBY, ADVOCATE FOR THE HOMELESS MENTALLY ILL - Thursdays, 3pmEST ~ Darby has been an advocate for the homeless mentally ill for more than twenty years. He has a B.A. in psychology from Emory University. Please call to speak on air at (347) 857-3293 for all broadcasts. Darby studied in psychology and theology in graduate school. He is a former employee of Georgia Regional Hospital, Boston State Hospital, and New Hampshire's Hanover-Darthmouth Hospital. In 1994, he co-founded Atlanta Food Not Bombs. Darby explains that people with serious mental illness are deliberately rendered homeless in the United States of America and deprived of psychiatric and medical health care services. This is unacceptable. Voters should petition elected officials to improve treatment and subsistence opportunities for mentally ill people and those with substance abuse issues. Use this link to contact your officials
To be a special guest, contact Mary Neal at MaryLovesJustice@gmail.com
Power concedes nothing without a demand. It never has, and it never will." Frederick Douglass
Please join Dr Jennifer Daniels on February 24, 2015 at 6pm EDT for the Healing with Dr Daniels Show.
Today's topic is: Patient Autonomy or Something More Sinister?
The FDA has just approved a genetic test for consumers to use at home without a Doctor’s permission. Patients can now freely purchase this genetic test and get the results. Is this an advance in patient autonomy? Or is there something more sinister? Dr Daniels reviews the accuracy of the test, the purpose of the test and how you can sidestep this plan to ensnare you in the Standard of Care. Tune in. Think Happens.
What’s Hot, What’s Not. Tune as Dr Daniels gives her best picks as to the up coming trends in Healing, self - care, health care and healing. You heard it first here. Think Happens.. Listen by phone (914-338-0695 or online click this link or copy this on your browser: Ask questions during the show, by phone call: 914-338-0695 or online go to http://healingwithdrdaniels.chatango.com/
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