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Mike and Joyce speak with Dr. Julia Hallisy about The Empowered Patient Coalition: providing healthcare improvement and patient safety tools directly to consumers.
About Dr. Hallisy:
Dr. Julia Hallisy obtained her BS in Biological Science from the University of San Francisco in 1984 and a second Bachelor’s degree from the University of California in Dental Sciences. In 1988, Dr. Hallisy received her Doctorate in Dental Surgery from the University of California at San Francisco School of Dentistry. Since that time, she has been a full-time practicing San Francisco dentist.
Her second child, Katherine Eileen, was diagnosed at five months of age with bilateral retinoblastoma. Dealing with her daughter’s life-threatening diagnosis, the many recurrences of cancer, and the subsequent treatments for the malignant and aggressive tumors marked the beginning an almost 20-year involvement in our healthcare system. The unique combination of her scientific training, her work as a healthcare provider, and guiding a child through a chronic illness has afforded her invaluable insight as an advocate for patients.
Dr. Hallisy began to research the topic of patient safety in 1998. She has lobbied for health care reform in Washington, DC with Consumer’s Union.
Dr. Hallisy is committed to and passionate about the subjects of patient safety, health care reform and medical error reduction. She is the founder and president of The Empowered Patient Coalition.
Dr. Hallisy was born and raised in San Francisco, where she lives with her husband, John Hallisy, and their two sons, Daniel and Kevin. The Hallisy’s ten-year old daughter, Kate, lost her life-long battle with cancer in February 2000.
Karen Mercereau is a nationally recognized visionary leader in healthcare, known for her ability to transcend challenges, and create opportunity from complexity. This was the quality behind her founding of RN Patient Advocates in 2002, for which she received a Purpose Prize Fellowship. A clinical RN for 45 years in diverse intensive care as well as community health settings, Karen was also integral in developing the first hospice in Tucson, AZ. Recognizing the dearth of public health programs available in the AIDS community in the late 1980’s, she chaired a countywide consortium to develop AIDs relief programs in Tampa Bay. Karen has also been instrumental in the design and implementation of hospital and health care systems, lecturing nationally on their wider applications. Currently, Karen heads the RN Patient Advocate Learning Intensive in association with the University of Arizona College of Nursing. This immersion learning program for qualified clinical RNs prepares them for the development of their own practices as independent RN Patient Advocates (iRNPAs).
Karen is also the leader of the RN Patient Advocate Group Practice in Southern Arizona comprised of independent RN Patient Advocates who provide both individual RN Patient Advocate services as well as community health literacy programs. She is the President of Health Education and Advocacy Leaders, Inc., a foundation she started to support community health literacy programs.
Dr. Nancy Finn has written a sequel to her book, ePatients Live Longer. Joyce and Mike speak with her about the new edition, and what she has learned since the writing of her earlier book. How does it help a patient to do some research, get engaged, and advocate for him or herself?
See Nancy's website at http://healthcarebasicsinfo.com/
Mike and Joyce speak with Dana Dornsife, President and Founder of an organization called Lazarex that helps people identify and participate in clinical trials that may be appropriate for their condition.
Dana first became involved in cancer patient advocacy when her brother-in-law, Mike Miller, was diagnosed with pancreatic cancer in 2003. Mike had three children, the youngest of whom was only four years old.
Dana and her family searched for options for Mike that would buy the family some time and found a clinical trial treatment. Mike was treated successfully and lived long enough for his youngest daughter to have real memories of him.
Since then, Dana has fought tirelessly for improved options for cancer patients who have been told there is no hope left.
Lazarex Cancer Foundation was formed in 2006 to build a bridge to hope, dignity and life for cancer patients and their families. It provides financial assistance to defray the costs associated with patient participation in FDA clinical trials. Additionally, it helps patients navigate their clinical trial options and provide community education and outreach services.
- helps patients of all ages and walks of life, with all forms of cancer.
- helps patients take advantage of medical breakthroughs today, because they may not have a tomorrow.
- believes that the size of a patient's checkbook should not stand between them and the choices they make or the treatments they need.
- provides resources to fill the gap that exists between when a patient is told there is no more hope and when they are truly done with their journey in life.
For more information, see <a href="http://www.lazarex.org">http://www.lazarex.org</a>
Sallie O. Elkordy, Host of "Public Advocate" can be contacted here: https://www.facebook.com/pages/Sallie-O-Elkordy-for-NYC-Public-Advocate/587347554614900 & http://BillionToddlerMarchForSurvival.blogspot.com/
Guest, Nurse Theresa Atchley
According to the Rape, Abuse, and Incest National Network, another American is sexually assaulted every 2 minutes. Sexual assault is a very serious and disturbing societal concern for everyone. Advocate and spokesperson Kenyetta York joins the national award-winning radio talk show Let's Talk America with Host Shana Thornton on Tuesday, December 9, 2014 at 7:30 pm EST to discuss sexual assault awareness with listeners. This important segment is for all community members. Do tune in- awareness and knowledge is critical. Join us for talk radio with substance!
*Please support our national sponsors and partners by visiting www.letstalkamericawithshanathornton.com.
Mike and Joyce chat about the adventure of going outside your comfort zone for medical care.
Joyce has been hosting a family from a village on the west coast of Ecuador who are in Boston to get life-saving heart surgery for their son. Not only have they traveled a great distance, but Boston has very different weather than the tropical weather of Ecuador, the food is entirely different, and they don't speak any English.
They also chat about some of the highlights of the shows of 2014, and foreshadow next week's Christmas week show about considering clinical trials, and the resources that are available to assist you in finding and joining clinical trials that might be helpful in your situation.
Many thanks for listening in 2014, we hope you enjoy next week's show, and that you will be with us in 2015, happy and in good health.
Be well, and be a Powerful Patient.
Patient Advocacy is an important area of specialization concerned with a patient’s knowledge regarding the use of health plans, insurance, understanding medication that has been prescribed to you as well as your diagnosis and treatment. With the Institute of Medicine reporting that anywhere between 44,000 and 98,000 hospital patients die every year due to medical mistakes, it is increasingly vital that patients have someone to help guide them.
In this episode of iNurse Radio, our host Jeff Allen chats with Ava Sammarco, LPN, regarding the importance of patient advocacy, how patients can avoid succumbing to the problems in our healthcare system and the questions you should be asking as a patient to ensure you receive above standard medical care.
Ava Sammarco, LPN
Ava Sammarco is a Licensed Practical Nurse at Park Creek, a residential care center located in Park Creek, Buffalo.
With more than 35 years in the field Ava is an expert in geriatric and acute care as well as patient advocacy, one of her favorite topics! She is also the host of a radio show called "Nurses Notes" and television show entitled "Health Focus".
Joe Burns, Author of "SECRET COURTS Ireland's Next Scandal Waiting to be Exposed" ~ Purchase it here https://gumroad.com/l/aObkp
Sallie O. Elkordy, Host of Public Advocate: https://www.facebook.com/pages/Sallie-O-Elkordy-for-NYC-Public-Advocate/587347554614900 ~ http://BillionToddlerMarchForSurvival.blogspot.com/
OPPOSE Monetary Incentives for removing children from their homes. https://www.facebook.com/events/406005196217873/
I sent this bill, "Vaccine Free 2015" to my Congressman's Legislative person last week and followed up with another e-mail this week. You too must take this action and follow up weekly. Do it NOW and allow them to mull it over during the holidays. Legislators have vaccine injured children in their own families or extended families just like us. One of them will have the COURAGE and courage is CONTAGIOUS! :) Sal https://www.facebook.com/events/1024693647546847/
Joyce and Mike speak with Dr. Joshua Seidman about the concept of "Meaningful Use" in healthcare and how it can be used along with electronic health records (EHR) to improve patient care.
Dr. Seidman is Vice President in charge of Payment and Delivery Reform at Avalere Health. He is also the Immediate Past President of the Society for Participatory Medicine.
Previouslyt, Seidman was the Director of Meaningful Use at the Office of the National Coordinator (ONC) for Health Information Technology within the U.S. Department of Health & Human Services. At ONC, Dr. Seidman guided development of resources that helped providers become meaningful users of HIT, and helped to evolve meaningful use practice and policy. During nearly two decades in health care, Seidman has focused on: quality measurement and improvement; the intersection of e-health and health services research; and structuring consumer e-health interventions to support improved health behaviors and informed decision making.
Before that, Seidman was the founding President of the Center for Information Therapy, which advanced the practice and science of delivering tailored information to consumers to help them make better health decisions and lead healthier lives. At the IxCenter, Seidman focused on stimulating innovation, diffusing best practices, and evangelizing for a patient-centered orientation to implementation of HIT applications.
See also e-patients.net and http://participatorymedicine.org
The Sharps Patient Support System
Pharmaguy interviews David P. Tusa, CEO and President, Sharps Compliance, Inc.(see Bio), who describes The Sharps Patient Support System and how his company collects data from sharps containers to determine whether patients are adhering to their medication therapies.
Questions/Topics of Discussion
Can you tell us what kinds of patients use "sharps" for self-injection? What makes this a unique patient group? What unique challenges do they face?
What data can you collect from disposed sharps? How can pharmaceutical product managers use this data to improve patient adherence & formulary position?
What other adherence-related services do you offer through The Sharps Patient Support System?
How does the program work? Do patients enroll in this program?
Sharon R. Wells is a writer, entrepreneur and motivational speaker. Using her own personal testimony of survival for illustration, she is a passionate advocate who speaks out about prevention and awareness of sexual abuse. With a message focused and centered on encouraging hope, unwavering faith and perseverance, Sharon guides others to realize, evaluate and triumphantly overcome the obstacles in their own lives through self-awareness and individual growth. This author of several articles and essays and has written heartfelt, spiritual and inspirational messages highlighting her own individual healing journey while encouraging and uplifting others to do the same in their lives.
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