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Tuesday, April 14 - 3:30 pm
The amazing, incredible, fantastic Jimmy Pollard is going to be with us tonight. Jimmy has quite a speaking schedule these days and is on a mission to educate about clinical trials, namely Enroll HD (http://www.enroll-hd.org/), which is a worldwide observational study for Huntington’s disease families. This study will monitor how the disease appears and changes over time in different people, and is open to people who either have HD or are at-risk. Monitoring people over time in a real-world setting contributes to scientific knowledge. The study is designed to accelerate the discovery and development of new therapeutics for HD.
Jimmy says, "No volunteers for studies, no more advances in the quest for a cure!" Enroll-HD
Also find Jimmy's book on Lulu: "Hurry Up and Wait: A Cognitive Care Companion" (http://bit.ly/1DCUJmO)
This book will give you a set of exercises to simulate the cognitive difficulties faced by those with HD, a collection of tips to accommodate them in your home or care home, a strategy to develop new approaches to solving care problems and commentary on common problems faced by family carers and those they love.
Tune in and let's catch up with our most favorite man on the stand, Jimmy Pollard!
What is Laqunimod? Laquinimod is an experimental drug from TEVA Pharmaceuticals that has already been tested in previous clinical trials in several diseases including Multiple Sclerosis (MS). This drug is thought to affect (or modulate) immune activity by shifting an injurious inflammatory situation to one that is more protective and anti-inflammatory. There is also evidence from various clinical trials that laquinimod may delay progression of disability in MS, and that it reduces brain atrophy as measured by MRI brain scans. By reducing brain atrophy, this drug may have neuroprotective effects [Varrin-Doyer 2014]. This drug can trigger protective neuron factors like BDNF (as measured in blood of MS clinical trial participants) that supports the health of neurons.
We will be talking about LEGATO-HD clinical research trial that will test the safety of Laquinimod.
ON HELP4HD RADIO Tuesday, March 3, 3:30 pm PST/6:30 pm EST
Dr. Goodman writes about the Pride-HD (Pridopidine) study in her recent article...
"PRIDE-HD: Why We Should Bother"
Recruitment is not going well for PRIDE-HD, an important clinical trial now enrolling for Huntington's disease (HD). Why is this? Some think "why bother", particularly when testing a drug they may perceive as a failure in earlier trials. For some others, the trials may seem to too hard, too long, or not permit other drugs they are taking. Still others are waiting for the gene therapy magic bullet they believe is just around the corner...
Help4HD says, "Because we don't know until we try."
Tune in to the show and let's talk about it!
TUESDAY, MARCH 31 - 1:00 PM PST
Tonight our incredible special guest is Patricia Ortiz, Vice President of Patient Liaison at Rare Diseases Patients First! a nonprofit organization that focuses on educating patients with rare diseases about the clinical trial and drug development processes.
Patricia Ortiz began her professional career working at the National Metrology Institute in Germany and has expertise in many different engineering disciplines including precision engineering, nuclear physics, and quantum optics. Later she shifted her focus to Biomedical Engineering. Upon completing her Master’s Degree in Biomedical Engineering at the University of Applied Science in Luebeck, Germany she has worked for large medical device and biotech companies as well as small startups, leading cross functional team in medical software and diagnostic instrument development within the US and overseas.
Rare Diseases Patients First! is a nonprofit organization that was founded by Dr. Lorna Speid in 2014 and focused on educating patients with rare diseases about the clinical trial process and drug development.
Visit their Facebook page: https://www.facebook.com/rarediseasesPF
Visit their Twitter page: https://twitter.com/rarediseasesPF
TUESDAY, MARCH 17, 2015 3:30 pm PST/5:30 pm CST
Tonight our incredible special guests are Dr. Peg Nopoulos, Sonia Slevinski and Jane Kerr from the University of Iowa. We will be talking about the clinical study called Kids-HD/Kids-JHD. This study is sponsored by CHDI and is an ongoing study to help determine what is the best care protocol for the care and assessment of JHD children. Tune in and bring your questions. Call into the show on these two numbers: 310-982-4227 or 877-497-4103.
Talk to you soon!
For more informationn about Kids-HD/Kids- JHD visit their website:
In this episode of Cutting-Edge Benefits by ClaimLinx, Tom Quigley, national business consultant, will be taking a look back at the last five years with the Affordable Care Act, more commonly known as Obamacare. He will be talking about some of the key changes the law has brought to healthcare and discussing the positives and negatives of these changes. From the complications with HealthCare.gov to the new requirments on all insurance plans, this show will have anyone informed on the evolution of this law and the efffects it has had on the insurance industry.
The program all about TV, simulcast live on BlogTalk Radio and Brooklyn Independent Media HD. Our guest: Jonny Campbell, director of The Casual Vacancy, HBO's miniseries adaptation of the J.K. Rowling novel (premiering April 29-30). Also: listeners and viewers sound off on Netfix in our latest "Your Call" feature.
Ken Kraetzer of Harrison, NY based www.CBSServices.com will host a discussion of measuring social media performance that can help your business attract and service customers.
Our guests are Chris Porter, National Sales Manager and Mike Novak, Regional Sales manage at Act-on www.act-on.com/
Act-On provides automated management of sales lead generation campaigns and follow-up communication through out the sales process. Their service manages inbound campaigns such as Search Engine Optimization (SEO), Social Media, and Landing Pages. On the outbound side, Act-On helps manage and conduct email communications, events, and webinars. Their service and account team help clients "Nurture" the process of converting prospect leads into new long term customers. The Act-On package can include reporting, analytics, message (A/B) testing, and integration with Customer Relationship Management systems and mobile apps.
Founded in 2008 and serving sales and marketing teams at over 3,000 companies, Act-On has been recognized by both Forbes and Inc magazines as one of America's fastest growing companies.
Reach Mike Novak at (872) 243-2106 Email: firstname.lastname@example.org|
CBSIServices provides a variety of special benefit services such as warranty extensions, travel protection plans, and premium accountservices that are used by consumer banking, retail and internet account issuers to activate accounts and attract transactions. Reach Ken on914-630-3457, email@example.com
Host Kevin Willett is joined by Joshua Raymond from One Good Act. OGA helps you find supporters already passionate about your mission, reminds your donors of why they support and believe in you and helps you teach your most passionate supporters how to advocate for your organization. Go here to download OGA for Android!http://bit.ly/1Eslxoc Go here to download OGA for Apple! http://bit.ly/1uQnkTd
The program all about TV, simulcast live on BlogTalk Radio and Brooklyn Independent Media HD. Our guests: Kollide.TV creator/chief executive officer Lateef Sarnor, and People You Know co-creators/executive producers John Dylan DeLa Torre and Baltimore Russell, whose series is now playing on Here! TV.
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