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Children and adults with intellectual or developmental disability may not be able to always tell you that they are experiencing pain, but it’s our responsibility to understand there are many reasons that people with ID/DD are experiencing pain. In this episode of Pain Waves Radio by Pain BC, Dr. Beverley Temple discusses how we can improve the quality of life of those with ID/DD by addressing the issue of chronic pain.
Dr. Temple is an Associate Professor with the University of Manitoba, Faculty of Health Sciences, College of Nursing and a Researcher with the St. Amant Research Centre. Her research focuses on support of people with Intellectual/Developmental Disabilities and Autism and their families.
This episode is generously co-sponsored by the Kootenay Community Council. The Kootenay Community Council, and other Community Councils around the province, work with Community Living BC (CLBC) to ensure accountability to communities, to inform CLBC of local trends and innovation, and to act in an advisory role at the local and regional levels. Community Living BC is the Crown Corporation that provides funding to support adults who are living with developmental disabilities in BC.
You can access the Non-Communicating Adult Pain Checklist mentioned in the episode on Pain BC's website. Find more resources to support you on the St,Amant website and the Surrey Place Centre website.
Please note we are no longer taking calls to Pain Waves Radio by Pain BC.
Severe chronic pain, financial hardships, and intense emotional suffering are just some of the consequences of workplace injuries. In this month's episode, co-hosted by Pain BC founding member Dr.Michael Negraeff, we discuss the serious impact of workplace injuries and the challenges faced by those trying to return to work while experiencing persistent pain and dealing with the Worksafe BC claims process. Our guest, Dr. Cecil Hershler, has been practicing medicine since 1985 and has a special focus on chronic pain and pain management. He recently co-authored a study titled Work injuries, chronic pain and the harmful effects of WorkSafeBC/WCB compensation denial.
Dr. May Caprio and Linda Cundiff will unlock some mysteries and myths around sleep. How can we get better sleep, even if we're living with chronic pain? We'll find out the answers to these questions and more on June 3, 2015 at 3pm.
True or False?
1. The more sleep I get, the healthier I'll be.
2. Waking up at night means that I'll be tired the next day.
3. Snoring is common and totally harmless.
4. It's important to always keep track of how much I sleep.
5. Pain increases the amount of time in Stage 1 light sleep.
Dr. May Caprio is a registrant of the College of Psychologists of British Columbia providing psychological services for the Pain Program at the Royal Jubilee Hospital in Victoria as a member of the interdisciplinary team. She has practiced in the area of pain management, neuropsychology and brain injury. She has been a consultant in private industry, providing psychological assessments, individual psychotherapy and marriage counselling, and has given presentations on sleep, memory enhancement, stress management, and optimal performance.
Linda Cundiff is an Occupational therapist and co-leader in the sleep and pain program working with the RJH Pain Program. She has been an occupational therapist since 1982. It is a privilege to work in a field that is practical, holistic and client focused. Linda has worked with Royal Jubilee Pain Program since its inception 8 years ago and has developed and integrated many programs that clients request, and sleep is definitely one of those. Linda is currently working on the PainBC pain champion program for occupational therapists in the province.
Sharon Sayler welcomes author Toni Bernhard to Life Interrupted Radio’s special Autoimmune Series for a fascinating interview from someone who is living well with a chronic illness while helping others to live well too regardless of their diagnosis.
Looking back over her 14-years since her diagnosis, Toni will reveal what she has discovered about living life to its fullest and how you can uncover your whole new life. Just some of what Sharon and Toni will share is:
- How thinking small leads to a bigger, fuller life
- How to move out or your stories into possibilities and opportunities
- How to practice mindfulness without the meditation
- How to welcome the “blues” and painful emotions and what to do next….
Toni Bernhard is the author of three critically-acclaimed books, How to Be Sick, How to Wake Up, and the just-released How to Live Well with Chronic Pain and Illness. In this conversational interview Toni shares practical tips she has learned from her 14 years of living well even with a chronic illness. She also writes for Psychology Today online where her popular blog is titled, “Turning Straw Into Gold.” You can learn more about Toni and her books at her website www. tonibernhard.com.
The last thing you want to think about at the end of a long day is what you’ll be making for dinner, and your family doesn’t need another meal from a bag or a box.
In this episode, you will learn 4 ways a crockpot can be your very best friend.
For more, check out - https://paindoctor.com/every-chronic-pain-patient-crockpot/
Elizabeth M. Christy lives in Northern Virginia with her husband James, son Jimmy (5), and daughter Lucy (newborn). She is the best-selling author of the children’s book "Why Does Mommy Hurt? Helping Children Cope with having a Caregiver with Chronic Pain, Fibromyalgia, or Autoimmune Disease," and blogs on parentswithpain.com and potomacfallsmama.blogspot.ca. Additionally, she works as a Systems Integrator for TASC. In addition to basic survival, Elizabeth enjoys writing, sewing (especially in straight lines!), and reading good memoirs.
“Why Does Mommy Hurt?” is a great resource to talk to children about chronic pain and illness. On this episode, we'll discuss the guilt and shame many parents suffering from chronic pain feel about their parenting. The fact is that parents with chronic pain or illness can be just as awesome as “normal” parents when it comes to raising kids, and if you love your kids, that’s all that matters. We may not be able to walk a mile to the playground, cook a 7-course organic meal from scratch, or volunteer on a field trip to the amusement park, but that’s not what really matters. If you love your kids, you will find your own way, and your kids will know it. Also, many parents in this situation feel very alone, especially when first diagnosed. There are millions of families out there in the same situation, you are not alone, and you have support out there waiting for you!
On this episode of processing the pain Author Carlita Hodges the original Basketball Wife shares her journey of being married to a celebrity athlete and the pain she had to process, to step into purpose and begin to partake in God's promises. The founder of Purple Bottom Foundation, she is making strides in bringing awareness to Domestic Violence. Her story is one of tradgedy turned triumph.
Join us as we take a look at the heart of man, the dis-eases that is hindering us from being all that we were created to be. How do you mend a broken heart. Isaiah 66:2, tells us, "the Lord says, “These are the ones I look on with favor: those who are humble and contrite in spirit, and who tremble at my word.” Let's start the healing process.
If you're one of the many who suffer from fibromyalgia, or chronic pain / illness or know someone who is and would like to know more about alternative pain control therapies, this show is for you. Become educated on illnesses and health remedies.
Description of Show -- The Pain Warrior Crew Radio Show focuses on supporting those with fibromyalgia and other chronic pain conditions through news, education on alternative pain relief therapies, recipes, weekly segments, an appropriate level of snark, and if all goes as planned...some laughs. Because sometimes laughing at the misery that is chronic pain is literally all you can do about it. Seriously. It totally sucks.
Weekly segments also include: Fun with Fibro Fog, Life in Arizona vs Life in New York, Open the Floodgates, Practical Matters, #CannaCurious, But You Don’t Look Sick, Fibro With A Side Of…, and the great, all-time radio show must haves like stupid laws, weather, giveaways, and tips.
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