SORT BY Relevancy
Dr. Stanley Rockson (of Stanford University Medical School) states that: "Lymphedema is a common disease. Approximately 10 million Americans, for example, have lymphedema secondary to breast and pelvic cancer therapy, recurrent infections, injuries, or vascular surgery." (2010) Imagine, if there were approximately 10 million Americans then, how many more there are now in 2014 (knowing that there is no cure for it as it stands to date)?
For many years, I had key advocates come on my show to discuss various cases and, especially, the aspects of advocating in the legislature. On January 27th, Heather Ferguson (one of those advocates) will come on my show to discuss some updates on those legislative issues being presented.
Today, though, I will open the mic up to patients, advocates, and caregivers especially to tell their stories on how Lymphedema has affected them. We will then share this with legislators to personally hear the many stories typical to illustrate the pervasiveness of this condition.
Please mark your calendars and join us on March 6th at 10a CST to share and/or be better informed about these issues.
I have done several shows about Lymphedema and the grassroots efforts to get the Lymphedema Treatment Bill passed. This one came from an original airing of 5/1/10.
"Back in March, we had a show introducting you to the HR 4662 which involves the improvement for health care costs for lymphedema patients. Please join us again today to learn what has been done, what you can do, and what this means to you if you (or someone you know) has lymphedema. We need to get this bill passed in this year's legislation session. We will have Jennifer and Jenny on our show, as well as some other pertinent people that can add more to enlighten about this very important bill." http://www.blogtalkradio.com/oralhistory/2010/05/01/beyond-words-live--understanding-hb-4662
BEYOND WORDS LIVE is designed as a platform for survivors to tell their own stories in their own words.
For more information see http://facebook.com/LymphedemaInTheNews or http://lymphedematreatmentact.org/.
As we continue Awareness in August on Seize the Day I invite you to chime in at to discuss awareness. In regards to seizure disorders:
What is awareness?
What will awareness accomplish?
What are you ready to do in order to effectively raise awareness?
Join National Seizure Disorders Foundation as we engage in mature discussion on diverse subjects related to seizure disorder.
Call in with your questions and thoughts on awareness
Let’s take this hour and become more in order to move through each day and Seize the Day!
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Welcome again to another spectacular episode of NSDF Seize the Day! The only podcast sharing with the public the human expereince of seizure disorder. This week, we honor PTSD Awareness Day, June 27. Recently brought to our attention, PTSD Awareness Day is now a part of the NSDF calendar.
What is PTSD? A diagnosis of recurring issues expereinced by an individual as a result from a traumatic event.
During the show we will cover related questions including but not limited to:
What type of specialist treats/diagnoses PTSD?
What types of PTSD are there?
Where can one go for more help?
Join us for this spectacular hour as we discuss PTSD and PTSD Awareness. Tonights show is a continuation of the topic #ptsdawareness covered in our Tuesday night Power Hour through Twitter. For more details and weekly updates join NSDF Power Hour through Facebook.
Resources brought to you tonight:
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About NSDF - http://nsdf.us
Tonights Partner - TG Bears, maker of Epilpesy Bear and Jesy Bear
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