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HAVE YOU HEARD ABOUT THE NEWEST DIS-EASE IN PARENTS? IT IS THE "MARTYR SYNDROME!" MANY TIMES IT CAUSES A PARENT TO LEAVE HER/HIS CHILDREN EMOTIONALLY AND SOMETIMES PHYSICALLY. WE WILL TALK ABOUT THIS TODAY, MONDAY, AT 11, FAVORITE LISTENERS. LOVE, LINNY
Julie N. Jancius is the mom of Ellie, born with Noonan Syndrome. President/CEO of RASopathies Foundation and Noonan Syndrome Foundation branch. Julie discusses the rollercoaster journey of Noonan Syndrome and the gifts of RASopathies Foundation.
RASopathies Foundation (803)522-3110
Amanda Williams is a wife, mom, hairstylist, advocate for their son, Jayden, who has Angelman Syndrome, and resident of Ponchatoula, LA.
http://www.angelman.org Angleman Syndrome Foundation, Inc.
http://cureangelman.org Foundation for Angelman Syndrome Therapeutics
http://angelmanbehaviors.org Angelman Syndrome Foundation
Asperger's Syndrome or Asperger's Disorder is an Autism Spectrum Disorder (ASD) that is distinguished by patterns of symptoms as opposed to a single symptom. Characteristics of Asperger's can include restrictive patterning in behavior, activities and interests. It can also include preoccupation of narrow subjects, abnormalities in speech such as abrupt transitions, literal interpretations and mis-comprehension of nuance. But what we're going to focus on in this episode are the challenges that come from the unusually sensitive or insensitivity to sound, light and touch.
We will be joined by a former guest Steve from the episode Seduction by Sole who has Asperger's and can tell us first hand how Asperger's effects his sex and fetish life. This is an especially important episode for those of you in the sex and BDSM world who may encounter someone with Asperger's and how they can make their sexual experience even better and how to avoid pitfalls that can come with these intense sensitivities.
**Please Note** If you see a differing date in the url of this program, this is a BTR glitch for shows that start after a certain time of day. This show is definitely Tues Apr 30, 2013 at 10 PM ET. Although all our shows say that they are 2 hrs in length we try to keep it as close to 1 hr as possible so get those calls in EARLY!
On This Episode of The Beautiful Butterfly Show we will be Discussing " Understanding Down Syndrome". When it comes to Down Syndrome alot of people are often left clueless and to what it entails, how does it happen???... what its like for a child?? and what a parent goes through raising a child with Down Syndrome. Today Ms Teri The Advocate will be Joining us and sharing her personal story as she is raising a daughter with Down Syndrome!
***Down syndrome (DS), also called Trisomy 21, is a condition in which extra genetic material causes delays in the way a child develops, both mentally and physically. It affects about 1 in every 800 babies born in the United States.
Though Down syndrome can't be prevented, it can be detected before a child is born. The health problems that may go along with DS can be treated, and many resources are available to help kids and their families who are
Lisa grew up in a wonderful loving family, a picture perfect childhood with no complaints. At 18yrs young she would marry for the first time, give birth to her first children yet the marriage would fall apart. Soon Lisa would find someone new to love, and again would be married. Now a mother of five children she finds herself unhappy and regularly stepping outside of the marriage. Up until this point she was not a drinker at all, never touched a drug, except for her infidelity she was a good mama. The marriage would not make it through these deceptions and yet again Lisa, now age 35, finds herself in the middle of a divorce.
In an effort to cope with the pain she turns to alcohol, drugs and other devices to numb the pain. It becomes more than just a drink here and there; she begins to drink constantly then adds drugs until she is now a fragment of what she once was. Feeling so desperate, broken and helpless she tries not once, not twice but ten separate times to end her suffering…yet each time by the grace of God she wakes up ALIVE.
Tune in as Lisa shares her journey to perfect healing, as she falls in love with God and learns to love herself again. A very powerful testimony that is sure to leave your heart filled with joy.
Carrie Champeau, resides in Victoria, Minnesota. She is a wife, a SAHM and a mother of 4 adult children. 2 of the adult (ages: 26 and 22 years old) children were diagnosed with Cohen Syndrome approximately 6 months ago. Carrie lovingly tells the joys and difficulties of raising 2 chilldren with Cohen Syndrome.
Our guest co-host for our first Sunday show is Stacy Mantle of Pets Weekly. You will hear her hot new rap song, "The Rescue Rap!"
The premier of Pet Radios Sunday Rescue features Paws for Lilly, a 7 year old girl, who was born with Fetal Alcohol Syndrome. We would like to help her raise the required $13,000 for her service dog and create awareness about all the good dogs bring in human’s life, more precisely, kids with special needs.
“A service dog will do wonders for Lilly” as per her mom. It will help keep her calm and grounded. It will also help keep her safe as she doesn’t understand the dangers that are out in the world. She has no sense of stranger danger as she will go up to everybody and anybody in public.
FREEPLAY Dog Accessories will be giving 25% of its profits on every web orders using promo code: "Lilly" according to Sylvie Lampron, President of Freeplay who will also be a guest on the show along with Lillys guardian, Dana Davies-Hales.
Next we will be talking to Annie Hart, Exec Dir of The Bill Foundation, a rescue group serving the greater Los Angeles area, one of the biggest most populated concentrations of abandoned dogs in the country. She will share some very heartwarming stories of the dogs they have rescued and homed,
Ending the show will be Lee Day, a celebrity activist who will tell us about the Doris Day Foundation.
Sharon Byfield. The mother of Joey. I'm a loving mother of four. I love children and love working with them and helping them. I've been a foster mother for over 20 years and I've worked with pregnant teens, Medical Fragile babies, and Special Needs children. We have four children in which we love so dearly. Joey Byfield is a 12 year old boy who has Cru-de-Chat, Cerebral Palsy, and is also fed by a G-Tube. He doesn't walk or talk. But he's a loving boy and his spirit is as joyous as can be. He loves soft music, but he's a fan of Bob Marley. He will move those legs of his to jam to Bob Marley all day if he could. Joey is in need of a medical fragile bed that is very expensive, that will prevent him from falling out of bed, due to the fact that he can not break his falls. Joey has two sisters, an older brother; in which the youngest sister is medical fragile too. Joey wants to be where all the fun is and lives life to the fullest, omitting his situation.We hope this beautiful celebration can help him continue his life in a fulfilling way.
Cri du chat syndrome, also known as chromosome 5p deletion syndrome, 5p minus syndrome or Lejeune’s syndrome, is a rare genetic disorder due to a missing part of chromosome 5. Its name is a French term (cat-cry or call of the cat) referring to the characteristic cat-like cry of affected children. It was first described by Jérôme Lejeune in 1963. The condition affects an estimated 1 in 50,000 live births, strikes all ethnicities, and is more common in females by a 4:3 ratio
Most people wonder at some point if their relationship with alcohol is a positive one and feel guilty that ‘just the one’ more often turns into ‘just the seven’. There’s nothing wrong with wanting to enjoy yourself, but if you do worry about drinking too much, help is at hand. Tune in to this segment of The NLP View Radio Show, as host, Donna Blinston is joined by author, Kevin Laye to discuss his best-selling book, Positive Drinking, Control the Alcohol Before it Controls You .
Heartline with Rita Schulte
For more info on Rita please visit her web site at www.ritaschulte.com
Checking the Pulse on your heart by taking a look at some of the cutting edge issues that are affecting you and the people around you. And have you consider...
How in the world is all this mess called life affecting your heart?
Autism is hot topic surrounded by a lot of controversy. So today, We’re gonna get some expert advice on a form of autism called Aspergers Syndrome with my guest Stephanie Holmes. She’s a Certified Autism Specialist and a Christian Counselor. This is a really personal topic for Stephanie because her oldest daughter was diagnosed with Asperger’s Syndrome in 2004. Stephanie has a burden to help special needs students and families deal with the frustrations and challenges