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Do you suffer from constant burning, pain, or irritation in the vulvar area? Have you been told over and over that "it's just a yeast infection" or worse yet "it's all in your head"?? I'll be discussing the little-known topic of vulvodynia- "what is it?" and more importantly, "what can I do about it?" Important information for all women.
Fibromyalgia is a disorder that causes muscle pain and fatigue (feeling tired). People with fibromyalgia have “tender points” on the body. Tender points are specific places on the neck, shoulders, back, hips, arms, and legs. These points hurt when pressure is put on them.
People with fibromyalgia may also have other symptoms, such as:
Painful menstrual periods
Tingling or numbness in hands and feet
Problems with thinking and memory (sometimes called “fibro fog”).
A person may have two or more coexisting chronic pain conditions. Such conditions can include chronic fatigue syndrome, endometriosis, fibromyalgia, inflammatory bowel disease, interstitial cystitis, temporomandibular joint dysfunction, and vulvodynia. It is not known whether these disorders share a common cause.
In this episode of the Pelvic Messenger, our guest, Dr. Robert Echenberg spends almost 90 minutes discussing PGAD; helping listeners to understand more about this sensationalized disorder known at PGAD. Dr. Echenberg discusses at length why PGAD is a chronic pelvic pain disorder and why it is NOT a sexual disorder.
PGAD is characterized by unwelcome and intrusive genital arousal episodes that is unrelated to desire.
Dr. Echenberg has seen numerous patients with this condition, included among the more than 1200 patients he has seen with a variety of chronic pelvic and genital pain disorders such as Interstitial Cystitis, Vulvodynia, Pudendal Neuralgia, and Pelvic Floor Dysfunction.
In the latter half of the show, we discuss his three pronged approach to treating PGAD condition.
For more information, please visit Dr. Echenberg's website: http://www.instituteforwomeninpain.com/dr.-echenberg-answers-questions-on-pgad
Please enjoy the show.
NEW DATES (the date was changed due to weather in NYC, updated 3/5/14): The Rescheduled Conference will be held on May 31 to June 1, 2014 in NYC.
We are pleased to talk with Amy Stein, PT and Dr. Robert Echenberg of the ALLIANCE FOR PELVIC PAIN. They are here to discuss the 2nd Annual Patient Conference, designed to help women and men figure out how to truly heal and help living with chronic pelvic pain.
Please join our conversation by listening live at 3:00 pm Pacific time or 6:00 pm Eastern time
The Alliance for Pelvic Pain is offering a special discount to Pelvic Messenger listeners: $50 of the registration fee or $100 off for patients that will be flying to NYC to attend the conference (maximum discount is $100). To redeem discount, when registering, under comments, write in, “Pelvic Messenger Listener”. Those using this discount must pay by check, money order or wire transfer (Discount not valid with paypal payments).
On September 13, Lucian Vâlsan, James Huff, Huffnágel Pista and whoever shall call in will be talking about lies, damn lies and statistics that are permeating our culture and that have now been adopted by the EU is gospel for policy making.
We will tackle the “1 in 4” statistical lie in particular since “1 in 4” is now basically a meme to which not-so-well intended policy makers and advocates are attaching whatever cause or “fact” can be fitted – and those “causes” are usually about women because women is the only demographic that our society and our feminist culture cares about.
1 in 4 women dies from a heart disease (not true, but catchy – despite the fact that the actual figure is anyway significantly smaller than the one for men), 1 in 4 teen girls have an STI or 1 in 4 women and adolescent girls (really?) suffer from something called "vulvodynia" – which is a term that not even those raised in the medical field have never heard. These kinds of “statistics” are not only damn lies but some of them have already proven to be deadly dangerous (particularly the 1 in 4 lies related to cancer figures that have driven funding away from the necessities and towards ideological goals).
We will dissect all those lies, as well as present some real 1 in 4 figures and hopefully have some fun in the meantime.
The subject is tricky so please join us and call in at (001) 310 388 9709, or Skype in, after the news. If you have a 1 in 4 lie (or 1 in 3, or any other sensationalist “figure”) tell us about it. Let’s promote healthy skepticism to the “statistics” that pop up from various dubious places.
The show will commence at 7 PM GMT (London time).
That is 8 PM CET (Madrid, Berlin, and Skopje time)
That is 9 PM EET (Helsinki, Bucharest time)
That is 1 PM Central Time.
Recent studies have shown that vulvar pain affects 1 in 4 women, while only about 2% of those women actually seek treatment to help resolve this type of pain. Sara Sauder, PT, DPT will address Vestibulitis, a type of pain disorder affecting a woman's vaginal opening. Sara will educate the audience about signs and symptoms of Vestibulitis and treatment options available for those suffering with this condition.
The Pelvic Messenger brings to you a show which dives into the world of Chronic Pelvic Pain.
I , Elisabeth Oas suffer from multiple conditions and diseases in which give me Chronic Pelvic Pain. I have found that a multi disciplinary approach works best in managing the many conditions that can make up CPP.
Pelvic Messenger is an extension of the website
This week I bring to you Certified Womens Health Nurse Practitioner Donna Carrico. She is the head NP at the Womens Urology Center of Beaumont Hospital, Royal Oak, Michigan. This Center is extremely unique in its approach to Pelvic Pain. I invite you to learn more about it from my website. Donna has worked in Womens health for over 2 decades, and she will be answering questions, discussing her medical publications on Pelvic Pain, and talking about sexual dysfunction, IC, and Vulvodynia.
Daniel Clauw is a Professor of Anesthesiology. Medicine (Rheumatology) and Psychiatry at the University of Michigan (UM). He serves as Director of the Chronic Pain and Fatigue Research Center. Dr. Clauw is currently Co-Principal Investigator of the University of Michigan Discovery Site for the Multidisciplinary Assessment of Pelvic Pain (MAPP) network, focusing on identifying the underlying mechanisms for interstitial cystitis and chronic prostatitis. In addition, he serves as the chair of the MAPP network which includes six discovery sites, as well as a data and tissue coordinating center.
Dr. Clauw attended the University of Michigan for both undergraduate and medical school studies and then completed his Internal Medicine residency and Rheumatology Fellowship at Georgetown University. He joined the faculty at Georgetown University in 1990, and while there, founded the Georgetown Chronic Pain and Fatigue Research Center, and served as the Division Chief of Rheumatology, Immunology and Allergy, and Vice Chair of the Department of Medicine. Since moving to UM in 2001, Dr. Clauw continues his commitment to clinical care and research in overlapping conditions such as fibromyalgia and interstitial cystitis, becoming an internationally known expert in chronic pain, and especially the central nervous system contributions to chronic pain states, performing past or ongoing work in conditions such as low back pain, osteoarthritis, vulvodynia, endometriosis, irritable bowel syndrome, and temporomandibular joint disorder. His expertise lies in researching the physiologic mechanisms that underlie symptom expression in patients with chronic pain (i.e., fibromyalgia, interstitial cystitis, etc.) as well as characterizing these patients for both clinical and research purposes.
Do you suffer from…
…Vaginal/vulvar itching, burning, stabbing/throbbing sensations; painful sex; urinary urgency/frequency/pain? If so, then you’ve just found a “Hope Chest” filled with information & support.
We’ll explain how the conditions that trigger “chronic pelvic pain syndrome” (such as irritable bowel, interstitial cystitis, painful bladder syndrome, vulvodynia, vestibulitis, endometriosis) cause sexual pain and what you need to know to get help.
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