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  • 01:58

    Marian Hollingsworth: Medical Abuse of My Father & becoming a patient advocate

    in Parents

    Hosted by Marti Oakley & Debbie Dahmer

    My father, Keith Blair, went into the hospital in July of 2009 for diagnosis of back pain. Without our knowledge or consent, he was given a cocktail of Risperdal, Haldol, Ativan, Tylenol with codeine, and Morphine. When I asked the doctor about this, he said it was just "hospital delirium,"  Sent to a  nursing home, my father was given more antipsychotic drugs, along with double doses of AmbienCR, the long acting version of the drug. He ended up with the bad side effects of these black box drugs such as heart trouble, severe dehydration and kidney trouble, and sudden diabetes. He also contracted a MRSA eye infection which spread to his lungs, fell 7 times in 12 days and developed a bedsore. (He was only in the nursing home 18 days.) He ended up a second hospital due to heart and kidney problems, where the same nursing home doctor treated him.) At the second hospital, he was given daily Risperdal, and we were told to prepare for his death. When I went through the records later, I discovered that a cardiologist said he was improving and that he could be released to the nursing home in a few days.

    2. How to get ALL the records.

    3. Your rights in a hospital or nursing home as a patient or family member. Know the codes in your state so you can use them. if needed, if facilities try to violate these rights.

    3. Dealing with the health department for complaints. Your rights in a complaint. The complaint in my father's case resulted in a new policy from the health department, AFL 1108. It mandates that nursing homes must verify that patients on antipsychotic drugs being transferred from hospitals have informed consent forms in their records, and if not, that informed consent must be obtained before the drugs can be given.

    4. Dealing with the medical board for complaints.


  • 00:30

    Should I go to Patient Support conference?

    in Health

    What happens at a patient support conference? Is it worthwhile to go, or will it be stressful? 

    Carla talks with Robin and Joyce about her own recent experience. 

    Carla applied to the New England Regional Genetics Group (http://www.nergg.org) for an A. Merrill Henderson scholarship to attend a patient support conference.  This grant enabled her to attend and learn. 


  • 00:46

    VACCINES & VETERANS ~ Anita Stewart on "Public Advocate", Host Sallie O. Elkordy

    in News

    Anita Stewart has her own radio program, "Wise Women" http://www.wisewomenmediaradio.com

    "Public Advocate" Host, Sallie O. Elkordy for Mayor, Vaccine Free NYC

    Blog with 11/11 Event http://BillionToddlerMarchForSurvival.blogspot.com
    Legislation for a Vaccine Free 2015 http://tinyurl.com/VaccineFree2015


  • 00:43

    Ask the Advocate: How to Qualify for an IEP and/or 504 Plan for Kids with ADHD

    in K-12

    Parents often complain that their child with ADHD is struggling in school.   A common complaint is that public schools are not meeting the needs of students with ADHD.     In this edition, IEP Advocate Jamison Jessup will talk about how to help your child with ADHD become eligible for an IEP and/or 504 Plan and which one is better?

    Andrea Frank, founder of the ADHD Kids Care Facebook group and a parent who Jamison Jessup is helping, will be a special guest on this show.

    Join us this Sunday, October 18, 2015 at 8:00 p.m. (Eastern Standard Time).

    Jamison Jessup is a professional IEP advocate with MyChildWins.com.   He has participated in more than 600 IEP meetings and has represented parents in more than 225 due process hearings asserting the rights of student's with disabilities, including ADHD.


  • 00:31

    Dan Dougherty Living life to its fullest as a patient advocate with Epilepsy

    in Motivation

    Living with Epilepsy on a day to day basis can best be explained by one type of person. Someone diagnosed with it, who is now a patient advocate, a public speaker and is very open about his challenges and successes.

    Dan Dougherty.

    I am forty- year old man who who enjoys life and engaging with people!

    As a person with epilepsy and trained Toastmaster, I am offering myself to speak about this mysterious disorder from a personal perspective.

    I am trained by the Epilepsy Foundation Eastern PA as a Patient Advocate. This training and my personal experience qualify me to speak about epilepsy with authority. I believe epilepsy should be brought out of the shadows of the past and into the light of the present.

    My Story published in Neurology Now:


    Dan Dougherty

    Strategy of Success
    Brian A Cohen DTM Host

  • 00:17
  • 00:31

    Empowered Patient Coalition

    in Health

    Mike and Joyce speak with Dr. Julia Hallisy about The Empowered Patient Coalition: providing healthcare improvement and patient safety tools directly to consumers.


    About Dr. Hallisy:

    Dr. Julia Hallisy obtained her BS in Biological Science from the University of San Francisco in 1984 and a second Bachelor’s degree from the University of California in Dental Sciences. In 1988, Dr. Hallisy received her Doctorate in Dental Surgery from the University of California at San Francisco School of Dentistry. Since that time, she has been a full-time practicing San Francisco dentist.

    Her second child, Katherine Eileen, was diagnosed at five months of age with bilateral retinoblastoma. Dealing with her daughter’s life-threatening diagnosis, the many recurrences of cancer, and the subsequent treatments for the malignant and aggressive tumors marked the beginning an almost 20-year involvement in our healthcare system. The unique combination of her scientific training, her work as a healthcare provider, and guiding a child through a chronic illness has afforded her invaluable insight as an advocate for patients.
    Dr. Hallisy began to research the topic of patient safety in 1998. She has lobbied for health care reform in Washington, DC with Consumer’s Union.

    Dr. Hallisy is committed to and passionate about the subjects of patient safety, health care reform and medical error reduction. She is the founder and president of The Empowered Patient Coalition.

    Dr. Hallisy was born and raised in San Francisco, where she lives with her husband, John Hallisy, and their two sons, Daniel and Kevin. The Hallisy’s ten-year old daughter, Kate, lost her life-long battle with cancer in February 2000.

  • 01:01

    Powerful Patient meets Youth Services

    in Health

    Father Donald E. Mowery is the retired leader of Youth Services globally.  He has had a radio show, Talk it Out with Father Don, on WHBQ radio in Memphis, Tennessee, for the past 45 years.  This month Joyce Graff appeared on his show.  Joyce and Father Don have a great conversation about Powerful Patient and its mission, and also about Youth Services and its mission, highlighting many parallels.  In both cases, they work to empower people to work through the issues they cannot change and tackle constructively the things they can change.

    Learn more about Father Don.  A new book, Spiritual Networking, by Darrell B. Uselton and David Yawn, recounts the history of Youth Services in Memphis and worldwide.

  • 00:08

    Hello and Welcome to Medical Marijuana Patient Education

    in Education

    This seven minute recording introduces your host, Dr. Christian Hageseth III.  A 74 year old retired physician who has Parkinson's Disease, he has worked with medical cannabis for three years.  In that time he discovered that persons with little prior experience with cannabis frequently fail to continue because of ineffectiveness or negative side effects. Starting medical cannabis is not as simple as just lighting up a joint.

  • 00:37

    Women Rising Above Perceptions: Advocate,Counselor Chevonna Johnson shares on GD

    in Motivation

    Chevonna is an advocate, advisor, liaison, public speaker, community leader, counselor, mentor and a voice for promotion, support, education(self-esteem), awareness and research social, psychological, human awareness on bullying, domestic abuse, suicide awareness/intervention/prevention about people, processes, policies, and laws.

    Women Rising Above Perceptions is a mentoring/tutoring program to help young women understand their identity, know their purpose, write a vision and create strategies to stay on the path to fulfill their destiny. I have developed several programs that focus on the sociological, psychological and human impacts and effects on bullying, suicide awareness, intervention/prevention teen pregnancies (teens, youth, dating, spousal and school) violence and mental health that is affecting our youth today. 

    Chevonna works with community leaders and elected officials in order to bring real issues and effects to their attention so that effective solutions and resources can be provided and implemented. This is done by providing more enhanced education, awareness, workshops presentations and programs especially towards lower and middle schools so that our youth growing up in this new age can be more educated on the real dangers, risks and effects in our society on and offline.I work with parents and adults to make them aware and educated on the latest trends and issues in youth development, parenting, domestic violence, suicide and provide social services, support and resources to help them overcome their challenges and reclaim their lives. I am Executive Producer/ host of:

    AAU TEEN TALK Radio (www.globallinkzradio.com)

    AAU TEEN TALK TV (Madhousetv.net) 

    AAU Youth Magazine (www.aauym.com)

  • 00:30

    Wednesday Wellness Advocate Training

    in Health

    Wednesday Wellness Advocate Training