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Mike and Joyce speak with Dr. Julia Hallisy about The Empowered Patient Coalition: providing healthcare improvement and patient safety tools directly to consumers.
About Dr. Hallisy:
Dr. Julia Hallisy obtained her BS in Biological Science from the University of San Francisco in 1984 and a second Bachelor’s degree from the University of California in Dental Sciences. In 1988, Dr. Hallisy received her Doctorate in Dental Surgery from the University of California at San Francisco School of Dentistry. Since that time, she has been a full-time practicing San Francisco dentist.
Her second child, Katherine Eileen, was diagnosed at five months of age with bilateral retinoblastoma. Dealing with her daughter’s life-threatening diagnosis, the many recurrences of cancer, and the subsequent treatments for the malignant and aggressive tumors marked the beginning an almost 20-year involvement in our healthcare system. The unique combination of her scientific training, her work as a healthcare provider, and guiding a child through a chronic illness has afforded her invaluable insight as an advocate for patients.
Dr. Hallisy began to research the topic of patient safety in 1998. She has lobbied for health care reform in Washington, DC with Consumer’s Union.
Dr. Hallisy is committed to and passionate about the subjects of patient safety, health care reform and medical error reduction. She is the founder and president of The Empowered Patient Coalition.
Dr. Hallisy was born and raised in San Francisco, where she lives with her husband, John Hallisy, and their two sons, Daniel and Kevin. The Hallisy’s ten-year old daughter, Kate, lost her life-long battle with cancer in February 2000.
Patient Advocacy is an important area of specialization concerned with a patient’s knowledge regarding the use of health plans, insurance, understanding medication that has been prescribed to you as well as your diagnosis and treatment. With the Institute of Medicine reporting that anywhere between 44,000 and 98,000 hospital patients die every year due to medical mistakes, it is increasingly vital that patients have someone to help guide them.
In this episode of iNurse Radio, our host Jeff Allen chats with Ava Sammarco, LPN, regarding the importance of patient advocacy, how patients can avoid succumbing to the problems in our healthcare system and the questions you should be asking as a patient to ensure you receive above standard medical care.
Ava Sammarco, LPN
Ava Sammarco is a Licensed Practical Nurse at Park Creek, a residential care center located in Park Creek, Buffalo.
With more than 35 years in the field Ava is an expert in geriatric and acute care as well as patient advocacy, one of her favorite topics! She is also the host of a radio show called "Nurses Notes" and television show entitled "Health Focus".
Karen Mercereau is a nationally recognized visionary leader in healthcare, known for her ability to transcend challenges, and create opportunity from complexity. This was the quality behind her founding of RN Patient Advocates in 2002, for which she received a Purpose Prize Fellowship. A clinical RN for 45 years in diverse intensive care as well as community health settings, Karen was also integral in developing the first hospice in Tucson, AZ. Recognizing the dearth of public health programs available in the AIDS community in the late 1980’s, she chaired a countywide consortium to develop AIDs relief programs in Tampa Bay. Karen has also been instrumental in the design and implementation of hospital and health care systems, lecturing nationally on their wider applications. Currently, Karen heads the RN Patient Advocate Learning Intensive in association with the University of Arizona College of Nursing. This immersion learning program for qualified clinical RNs prepares them for the development of their own practices as independent RN Patient Advocates (iRNPAs).
Karen is also the leader of the RN Patient Advocate Group Practice in Southern Arizona comprised of independent RN Patient Advocates who provide both individual RN Patient Advocate services as well as community health literacy programs. She is the President of Health Education and Advocacy Leaders, Inc., a foundation she started to support community health literacy programs.
Thanks to Cynthia Maurer for recommending Dr. Leo Rebello to this program: http://www.healthwisdom.org
Host Sallie O. Elkordy's contact: https://www.facebook.com/pages/Sallie-O-Elkordy-for-NYC-Public-Advocate/587347554614900 and blog: http://BillionToddlerMarchForSurvival.blogspot.com/
Dr. Nancy Finn has written a sequel to her book, ePatients Live Longer. Joyce and Mike speak with her about the new edition, and what she has learned since the writing of her earlier book. How does it help a patient to do some research, get engaged, and advocate for him or herself?
See Nancy's website at http://healthcarebasicsinfo.com/
Sallie O. Elkordy, Host of "Public Advocate" can be contacted here: https://www.facebook.com/pages/Sallie-O-Elkordy-for-NYC-Public-Advocate/587347554614900 & http://BillionToddlerMarchForSurvival.blogspot.com/
Guest, Nurse Theresa Atchley
According to the Rape, Abuse, and Incest National Network, another American is sexually assaulted every 2 minutes. Sexual assault is a very serious and disturbing societal concern for everyone. Advocate and spokesperson Kenyetta York joins the national award-winning radio talk show Let's Talk America with Host Shana Thornton on Tuesday, December 9, 2014 at 7:30 pm EST to discuss sexual assault awareness with listeners. This important segment is for all community members. Do tune in- awareness and knowledge is critical. Join us for talk radio with substance!
*Please support our national sponsors and partners by visiting www.letstalkamericawithshanathornton.com.
Sharon R. Wells is a writer, entrepreneur and motivational speaker. Using her own personal testimony of survival for illustration, she is a passionate advocate who speaks out about prevention and awareness of sexual abuse. With a message focused and centered on encouraging hope, unwavering faith and perseverance, Sharon guides others to realize, evaluate and triumphantly overcome the obstacles in their own lives through self-awareness and individual growth. This author of several articles and essays and has written heartfelt, spiritual and inspirational messages highlighting her own individual healing journey while encouraging and uplifting others to do the same in their lives.
CareGiverStory.com is honored to have as our special guest Mary Aime’-Juedes RN, BSN, iRNPA.
Mary graduated from the University of Wisconsin-Madison with a Bachelor’s of Science in Nursing. She moved to Arizona in 1997 after freezing in Wisconsin just long enough. Her experience includes Medical/Surgical nursing, Oncology, Physical Medicine and Rehabilitation, Clinical Research, Workers Compensation Case Management, Managed Care Sales & Marketing, Utilization review, and Integrative and Functional Medicine.
The 20+ years of widely-varied experience and advanced training in RN Patient Advocacy has prepared her for her most recent endeavor as a Personal RN Patient Advocate.
Mary is happily married for more than 20 years to the ‘boy across the street’. She is the self-proclaimed “favorite” aunt to 10 nieces and nephews. Mary’s hobbies include traveling, acrylic painting, interior design and music. Her claim to fame is playing her flute in Carnegie Hall.
Mike and Joyce chat about the adventure of going outside your comfort zone for medical care.
Joyce has been hosting a family from a village on the west coast of Ecuador who are in Boston to get life-saving heart surgery for their son. Not only have they traveled a great distance, but Boston has very different weather than the tropical weather of Ecuador, the food is entirely different, and they don't speak any English.
They also chat about some of the highlights of the shows of 2014, and foreshadow next week's Christmas week show about considering clinical trials, and the resources that are available to assist you in finding and joining clinical trials that might be helpful in your situation.
Many thanks for listening in 2014, we hope you enjoy next week's show, and that you will be with us in 2015, happy and in good health.
Be well, and be a Powerful Patient.
Exhibiting artist, entrepreneur of a leading design firm in Australia, patient advocate for pelvic pain, creator of her own line of French greeting cards and coming soon working on a film documentary with Peter Lamont, Soula Mantalvanos is amazing in her own right. Add in the love story with her husband Theo who stands by her side as partner in the firm to ongoing supportive caregiver since her accident causing the ongoing disability.
Since Soula lives in constant pain, did they close up shop and call it quits? No, instead their design studio at home is now an international example by media including on The Design Files and designers of universal design at its best: hidden, unaware, completely the couple's own style, and a beehive of creativity and design solutions.
While an accident left her in constant chronic pelvic pain, she adapted by creating her design station at different levels so she could be in different positions. Then recently she took another step and went public, creating the largest pelvic pain library online.
Many stories in one- from being one of today's creative leaders, to patient advocacy with real solutions, to an old fashion love story- meet Soula and Theo live.
Deb Maybury is an author, singer song-writer, and a coach-someone who helps people work through their feelings about sexual abuse. She facilitates groups and is an advocate speaking out for those who have yet to find their voice.
Web site: www.debmaybury.com
Little Girl, Young Boy music video: https://www.youtube.com/watch?v=embDOcQMT4k
FB Page: Reveal, Connect and Heal
Book: Unlock the Door-Beyond Sexual Abuse.
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