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Patient Advocacy is an important area of specialization concerned with a patient’s knowledge regarding the use of health plans, insurance, understanding medication that has been prescribed to you as well as your diagnosis and treatment. With the Institute of Medicine reporting that anywhere between 44,000 and 98,000 hospital patients die every year due to medical mistakes, it is increasingly vital that patients have someone to help guide them.
In this episode of iNurse Radio, our host Jeff Allen chats with Ava Sammarco, LPN, regarding the importance of patient advocacy, how patients can avoid succumbing to the problems in our healthcare system and the questions you should be asking as a patient to ensure you receive above standard medical care.
Ava Sammarco, LPN
Ava Sammarco is a Licensed Practical Nurse at Park Creek, a residential care center located in Park Creek, Buffalo.
With more than 35 years in the field Ava is an expert in geriatric and acute care as well as patient advocacy, one of her favorite topics! She is also the host of a radio show called "Nurses Notes" and television show entitled "Health Focus".
Karen Mercereau is a nationally recognized visionary leader in healthcare, known for her ability to transcend challenges, and create opportunity from complexity. This was the quality behind her founding of RN Patient Advocates in 2002, for which she received a Purpose Prize Fellowship. A clinical RN for 45 years in diverse intensive care as well as community health settings, Karen was also integral in developing the first hospice in Tucson, AZ. Recognizing the dearth of public health programs available in the AIDS community in the late 1980’s, she chaired a countywide consortium to develop AIDs relief programs in Tampa Bay. Karen has also been instrumental in the design and implementation of hospital and health care systems, lecturing nationally on their wider applications. Currently, Karen heads the RN Patient Advocate Learning Intensive in association with the University of Arizona College of Nursing. This immersion learning program for qualified clinical RNs prepares them for the development of their own practices as independent RN Patient Advocates (iRNPAs).
Karen is also the leader of the RN Patient Advocate Group Practice in Southern Arizona comprised of independent RN Patient Advocates who provide both individual RN Patient Advocate services as well as community health literacy programs. She is the President of Health Education and Advocacy Leaders, Inc., a foundation she started to support community health literacy programs.
Thanks to Cynthia Maurer for recommending Dr. Leo Rebello to this program: http://www.healthwisdom.org
Host Sallie O. Elkordy's contact: https://www.facebook.com/pages/Sallie-O-Elkordy-for-NYC-Public-Advocate/587347554614900 and blog: http://BillionToddlerMarchForSurvival.blogspot.com/
Exhibiting artist, entrepreneur of a leading design firm in Australia, patient advocate for pelvic pain, creator of her own line of French greeting cards and coming soon working on a film documentary with Peter Lamont, Soula Mantalvanos is amazing in her own right. Add in the love story with her husband Theo who stands by her side as partner in the firm to ongoing supportive caregiver since her accident causing the ongoing disability.
Since Soula lives in constant pain, did they close up shop and call it quits? No, instead their design studio at home is now an international example by media including on The Design Files and designers of universal design at its best: hidden, unaware, completely the couple's own style, and a beehive of creativity and design solutions.
While an accident left her in constant chronic pelvic pain, she adapted by creating her design station at different levels so she could be in different positions. Then recently she took another step and went public, creating the largest pelvic pain library online.
Many stories in one- from being one of today's creative leaders, to patient advocacy with real solutions, to an old fashion love story- meet Soula and Theo live.
The Powerful Patient has recently been granted full membership in the International Alliance of Patients' Organizations (IAPO), an organization of organizations worldwide,
IAPO is a unique global alliance representing patients of all nationalities across all disease areas and promoting patient-centred healthcare around the world.
IAPO members are patients' organizations working at the international, regional, national and local levels to represent and support patients, their families and carers. A patient is a person with any chronic disease, illness, syndrome, impairment or disability.
Joyce and Mike speak with Rachel Seal-Jones,Senior Policy Officer of IAPO, about the organization's activities. IAPO has recently been granted special consultative status with the United Nations Economic and Social Council (ECOSOC).
IAPO will now actively engage with ECOSOC and its subsidiary bodies, the United Nations Secretariat, programmes, funds and agencies in a number of ways. This includes:
Attendance at meetings and access to the United Nations
Submission of formal statements and oral presentations to the Council and other UN bodies on relevant topics
Taking part in consultations with ECOSOC and other UN bodies
For additional informaion, please see http://www.patientsorganizations.org
Dave deBronkart has a well-earned reputation as an e-Patient. An internationally recognized speaker, author, and health policy advisor, he has words of strength for patients for sure.
In addition, he works with physicians, hospitals, and pharmaceutical companies to help them Let Patients Help!
When most manufacturers decide to create a new product, they do market research and conduct focus groups to determine in advance what the consumers want.
In medicine, it's mostly about what the doctors want.
But the doctors are not the end-user consumers in medicine, they are talented and experienced personnel, but the end-user consumers are the patients.
Come hear what Dave believes are the many ways that Patients can help improve healthcare.
See also Dave's new book, Let Patients Help! A patient engagement handbook - how doctors, nurses, patients and caregivers can partner for better health care. http://www.epatientdave.com/let-patients-help/
Audio clip credits:
Gimme My DaM Data – Maastricht, 2011
Posted by WellApps, https://www.youtube.com/watch?v=0b4li7N_7Ck
Music Video by the Collaborative Agency Group, 2013
Come and join the Cautious Patient Communities where patients and families learn how to be informed and involved in their healthcare. This leads to better healthcare outcomes, as well as a sense of no longer being an outsider in your own care!
Take control and be part of the solution to learn more about being responsible and effective advocates for yourselves and your loved ones.
Monday night, November 11, meet Jeff. Learn about how he spoke up and his actions of being informed and getting involved changed the course of his care and maybe even saved his life!
About CPC Blog Talk Radio: Join us as we chat about how we became Cautious Patients. Cautious Patient Communities is a group where patients and families learn how to be informed and involved in their healthcare. This leads to better healthcare outcomes, as well as a sense of no longer being an outsider in your own care!
Now we can share what has worked during this 30 minute Blog Talk Radio show!
On this show we will discuss how to become a better healthcare advocate for yourself by presenting information and original research that cover concerns involving the relationship of the patient in the healthcare system.
Know-Centre reserves the right to read on the air and/or publish on its website or any media format now known or unknown the e-mails, instant messages and letters that we receive. They may be edited for clarity and/or conciseness and identify authors by name and location. By sending us an email, instant message or letter, you agree to these terms.
Medication errors happen at home, in the hospital and in the pharmacy.
We will be interviewing Maria L. Franco PharmD, CGP who will share her expertise on some of the most common errors and how they can be avoided. She will be sharing actual stories of how medication misuse and improper use can change the outcome of patient care.
Learn how medication dependency and abuse may be avoided with a Designated Medication Manager and how errors in the hospitals may be prevented with patient and family participation.
CareGiverStory.com is honored to have as our special guest Mary Aime’-Juedes RN, BSN, iRNPA.
Mary graduated from the University of Wisconsin-Madison with a Bachelor’s of Science in Nursing. She moved to Arizona in 1997 after freezing in Wisconsin just long enough. Her experience includes Medical/Surgical nursing, Oncology, Physical Medicine and Rehabilitation, Clinical Research, Workers Compensation Case Management, Managed Care Sales & Marketing, Utilization review, and Integrative and Functional Medicine.
The 20+ years of widely-varied experience and advanced training in RN Patient Advocacy has prepared her for her most recent endeavor as a Personal RN Patient Advocate.
Mary is happily married for more than 20 years to the ‘boy across the street’. She is the self-proclaimed “favorite” aunt to 10 nieces and nephews. Mary’s hobbies include traveling, acrylic painting, interior design and music. Her claim to fame is playing her flute in Carnegie Hall.
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