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Today’s show was actually suppose to be on hospice and palliative care but do to phone line issues our guest was unable to get through the lines. This is the first time this has ever happened, so again I apologize for any inconvenience. The show has been scheduled for July 18th. Chris Morrissette will be our 2nd guest on that day.
Rick Phelps the Founder of Memory People on Facebook and our Channel Expert Living with Alzheimer’s was able to join us for the whole show. We discussed a new program we are rolling out called “Dementia Chats” which will be a webinar platform that will be free and recorded for easy access for the everyone. Dementia Chats will be a interview style where I interview “Experts,” those who actually have the dementia.
In addition, we discussed “Dementia Service Dogs.” Rick Phelps will be getting one himself this fall and we are all looking forward to more information regarding this program and “SAM” his personal service dog.
Many of us are uneducated in the world of aging....We fail to tap into our sensitivity as we see our aging parents and grandparents...Sometimes we even assume that their cry for help through forgetfulness, is just a means for attention.
How is it possible at the age of 78 to remember what was taught during our toddler stages, but forgetting we graduated with honors from a prestigeious college? How can we remember how to cook during golden years, but forget we gave birth to 4 beautiful children?
How does it feel when you own mother no longer recognizes you? Or your dad never remembers you name?
Let us open the door to Dementia and allow the details to be shared with us....
Patients with dementia develop dysphagia ( swallowing problems) sometime during the clinical course of their disease, and it is estimated that 45% of institutionalized patients with dementia have dysphagia. Complications from swallowing problems resulting from neurological diseases and dementia can include: dehydration, malnutrition, and aspiration pneumonia, often resulting in repeat hospitalizations, and sometimes resulting in death.
Join me and guests: Roya Sayadi, PhD ,CCC-SLP, and Joel Herskowitz, M.D.,authors: Swallow Safety: How Swallowing Problems Threaten the Elderly and Others: A Caregivers Guide to Recognition, Prevention, and Treatment. Their book was written in an attempt to provide people with a basic understanding of swallowing and practical suggestions that might “prevent problems and promote greater safety.
Laura Michael, is a nutritional consultant and owner, Dysphagia Supplies Direct. When Laura’s own father was diagnosed with Lewy Body Dementia she committed to help her mother keep her father living well at home, and continues that work with others.
Learn more: www.dysphagiasupplies.com
Life or Death with Dementia - The Taboo Conversation
Today we will devote the full two hour show to a conversation with a variety of people and thoughts of living and dying with dementia. Should one have the ability to decide when they want to end their life? If so, when and under what circumstances? Hear from those living with the disease, care partners, a Doctor, a Hospice Worker, an Attorney and more. My guess is you are going to be pretty surprised by what you hear during this conversation. I know I was.
Please note, Alzheimers Speaks understands not everyoe will appreciate let alone agree with all comments on this show. So feel free to call in and join the conversation.
Our only rule is, that all comments be respectful.
Our goal is to get the topic off the taboo list. It is our beleif we need to learn more about how everyone deals with this diagnosis. What are their needs? What are their concerns? How can we help live better with dementia?
What questions do you have? What thoughts of yours do you want heard? Call in and join the conversation or use the chat box to let us know your thoughts.
Join us on Monday, September 23, 2013 at 7:00 PM EDT as we continue recognition of World Alzheimer's Month. Our special guest, G. Allen Power, MD, is a board certified internist and geriatrician, and clinical professor of medicine at the University of Rochester, New York. Dr. Power has been interviewed by BBC Television, The Washington Post, The Los Angeles Times, The Wall Street Journal, Singapore’s Straits Times, and many more. In Dementia Beyond Drugs: Changing the Culture of Care, Dr. Power addresses the development of guidelines for sustainable communities that embrace people of all ages and abilities. His critically acclaimed book won the "Book of the Year" Award from the American Journal of Nursing and a Merit Award from the National Mature Media Awards. His work abroad includes a Bellagio Residency in Italy by the Rockefeller Foundation and collaboration on the International Advisory Board for Australia's Dementia Foundation and the South Africa Care Forum. Dr. Power's contributions to the "Hand in Hand" educational materials will enhance care for patients and compassion for caregivers, plus enlighten the U.S. Senate Special Committee on Aging. Dr. Power is featured in the new documentary Alive Inside, awakening the healing power of music. As a musician and songwriter he has worked with well-known artists, including Peter, Paul and Mary. His song, “I’ll Love You Forever” was played by Walter Cronkite in a Discovery Channel profile of American families. We look forward to a compelling hour with Dr. Power, uncovering his blueprint to change the culture of care for families living through Alzheimer's, as well as other forms of dementia.
Carol Howell is a Certified Dementia Specialist and Endorsed Life Coach with an emphasis on Music Therapy. After her husband's brain injury in 1992 and her mother's diagnosis of Alzheimer's in 2006, Carol felt the need to learn about the brain. As her knowledge increased, she became more intrigued and determined to become an equipped and prepared caregiver. Her company, Senior Life Journeys, was born from this desire to learn and help others.
Carol is the author of IF MY BODY IS A TEMPLE, WHY AM I EATING DOUGHNUTS? It tells of the "amazing miracle" that helped her lose 100 pounds. The book is written with the humor and sincerity Carol is known to display in her own life.
Carol also authored LET'S TALK DEMENTIA - A Caregiver's Guide. This easy to read book is full of helpful tips for caregiving, information about dementia, and 23 SMILES that will brighten your day.
Carol resides in South Carolina with her husband, Michael, and they are the proud parents of a daughter who is a physician assistant in Florida.
Our first guest is Ellayne Ganzfried, the Executive Director of the National Aphasia Association. We will discuss what Aphasia is, how it affects people, potential treatment and research and how it's different from other forms of dementia. Website Email - Ganzfried@aphasia.org Resource Line (800) 922-4622
Laurie Ellis-Young and Nancy Chakrin will be our second guest today. Laurie is a pioneer in breathwork as an empowering and healing modality. Nancy is an award-winning photographer, graphic designer and landscape painter. Together they published the book, "FRIENDSHIP The Art of the Practice," which includes inspirational friendship quotes and photographs of women ages (10-100) doing partner yoga poses in spectacular nature settings around the globe. I think you will find this to be a very informative conversation on the power of breath. Laurie will even take us through a breathing exercise you can do anywhere any time. Contact Info Website: www.BreatheTheChange.com Email: Laurie@BreatheTheChange.com Nancy's Website: www.NancyChakrin.com Email: Nancy@BreatheTheChange.com
Energy Healing of Reiki for Dogs Michelle Huntting and Kathleen Parsad will be discussing the benefits of using Reiki with dogs.
Kathleen has been practicing Reiki full time since 2002 and has authored Reiki for Dogs and co-authored The Animal Reiki Handbook and Animal Reiki: Using Energy to Heal the Animals in Your Life she has written many articles on animals and Reiki and her work has been featured in The Journal of the American Holistic Veterinary Medical Association, Animal Fair, The Whole Dog Journal, Dogs Naturally Magazine, Dog Fancy, Animal Wellness Magazine, Equine Wellness Magazine, and Natural Horse Talk Magazine. She has been featured on many radio shows, local news and the national PBS series Healing Quest.
She has taught Reiki to the staff of organizations such as Best Friends Animal Society, the San Francisco SPCA,The East Bay SPCA, The Humane Society of Silicon Valley, Bright Haven Healing Arts Center for Animals, Guide Dogs for the Blind, and The Elephant Sanctuary.
Sponsored: Kenyon Canine Institute
Our 1st guests, are two sisters; Mary Jane McPhee and Carol McPhee. Both retired teachers who together created "Lifetimes The Game of Reminiscence." We will learn how and why they developed the game and how it is having an impact on those with dementia as well as those caring for them.
Our 2nd guest, is Jane Snyder, an entrepreneur and founder of "Puzzle with Me," which is an engaging way to socialize for those with dementia. Learn how and why these special puzzles can be beneficial to both the caregiver and the person with cognition issues.
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