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I have a child with a developmental disability.. where will they live without me?
Rachael has worked with individuals with developmental disabilities for approximately 7 years. Most recently, she was an Assistant Manager for The Center for Disability Services for a group home with 7 adults. Rachael is currently a full time MSW student at SUNY Albany.
When a family has a child with a developmental disability, their future is often uncertain. Individuals with developmental disabilities are often somewhat, if not completely, dependent on their caretakers. Group homes are often an option for families to consider as their child continues to grow and parents become older and less able to care for their child.
The joy of being a Parent is one you can not put a price tag on. Some people choose to be child-free but many look forward to carrying their own babies, rolling on the floor with them, doing the small things, big ones and everything between. Then, the reality of life sets in, in a totally different way when our angels are diagnosed with having a disability.
On this week's episode we will be speaking with two wonderful women - BEBE CLEMENT and VICTORIA LAWRENCE on RAISING CHILDREN WITH DISABILITIES - both sharing their personal stories.
Touching on -
How do you get a diagnosis?
What can you do to help the child?
How does it affect the family dynamic?
How do siblings handle it?
Financial/ marital pressures?
What can family and friends do to help?
How do you keep yourself sane?
in Self Help
Did you know that Whoopi Goldberg had a learning disorder as a child? Were you aware that Harriet Tubman had epilepsy? These are only two of the many examples of Blacks who became successful despite their disabilities. Some people tend to discourage others with disabilities from achieving their dreams because "it's for their own good"; they want to overprotect them or they just don't understand how a person can accomplish anything despite his/her "limitations." Once you hear these different celebrities' stories, you'll never view people with disabilities the same way again. You will be inspired and encouraged to uplift someone else and even accomplish your own goals!
Join us for a conversation with Dr. Marlene Chait, Disability Studies Educator / Consultant / Grant Development / Researcher, on topics of particular interest to women with disabilities. We'll discuss women as sexual beings, the overwhelming amount of physical, emotional, mental and covert abuse, isolation and other struggles they face, and the urgent need to meet the inclusion of seniors. We'll also discuss Marlene's work with women who became disabled during military service, and the need for community based supports and further study.
Marlene authored a dissertation entitled "An Exploratory Study About Women With Physical Disabilities: A Survey of Their Views on Personal Care Assistance Services (PAS), Sexuality Education, and Sexual Expression". She holds Doctorate in Education, Disability Studies/Transition Special Ed, from The George Washington University.
PA Independent Living Radio Show is brought to you by The Arc of Luzerne County, Fridays at 12:00 PM EST/EDT. Please consider a donation in support of our work to help improve the quality of life for people with Intellectual and Developmental Disabilities and their families. For more news and events of interest to the PA disability community, visit PA Disability News.
Thanks for listening!
We talk with Sara Weir, Vice President of Advocacy and Affiliate Relations of the National Downs Syndrome Society about advocacy efforts to get support for the Able Act. She and Mark Friese, Vice President of Merrill Lynch Special Needs Group will explain what the Able Act is and how it can help ensure independence and dignity for people with disabilities through tax free savings accounts.
Join us for a conversation with Zarifa Roberson, CEO of i.d.e.a.l. Magazine, the exclusive quarterly magazine for Urban Young People with Disabilities (i.d.e.a.l. is an acronym for Individuals with Disabilities Express About Life). The magazine focuses on disability lifestyles, culture and political issues facing the disability community, and features fashion, beauty, health & fitness, entertainment, sports, and editorial sections. We'll discuss i.d.e.a.l. Magazine's efforts to climb to the forefront of voicing concerns in the disability community, and Roberson's goals to be the next Oprah for the disability community and to make the magazine a global household name.
Roberson is a 35 year old from Philadelphia, PA, born with Arthrogryposis Multiplex Congentia (AMC). She holds a B.S. in Speech Communication with a minor in African American Studies from Millersville University, and M.Ed in Rehabilitation Counseling from Coppin State University.
PA Independent Living Radio Show is brought to you every Friday at 12:00 pm EDT/EST by The Arc of Luzerne County. Please consider a donation in support of our work to help improve the quality of life for people with Intellectual and Developmental Disabilities and their families.
Read and subscribe to PA Disability News to stay up to date on news and events of interest to the PA disability community.
Thanks for listening!
Babies who have had open-heart surgery, especially those with complex, congenital heart defects (CCHDs), are at much greater risk for brain injury or learning disabilities. Because of the heart defects themselves, and because of the complicated circulation involved with CCHDs, infants are more at risk for strokes. Infants who have had strokes often have brain injury due to stroke and those children with brain injuries caused in early childhood are more at risk for learning disabilities.
While this sounds very frightening, it doesn’t have to mean that your child’s quality of life will be greatly inferior to a child without a heart defect. Today’s show features a heart mom whose child had an anoxic brain injury (which is fairly uncommon), a pediatric cardiologist and pediatric neurologist from Boston Children’s Hospital, and a special education advocate. These expert Guests share information to help others navigate raising a child with a brain injury and/or learning disability.
in Self Help
In this episode Lisa A. Romano, Certified ACoA Life Coach, Mentor and Author helps we wounded Adult Children from dysfunctional homes understand how we can use pain to help us transcend our wounds and how by 'reframing' how we experience our pain can also speed along our total recovery.
If you have been lost, hang in there as Lisa explains the purpose of pain and how we can learn to appreciate duality in our lives.
As Lisa explains, there can be no understanding of light without some understanding of darkness. There can be no integration without understanding ideas of separation. There can be no experience of contentment without some experience of discontentment. It is our hope that by listening to this recording as well as many of Lisa's others, that your ideas about self, your past, healing, and about recovery will help you reframe your perceptions about pain for the purpose of healing completely.
Join us for a conversation with Devon Grant, Executive Director, of the Pennsylvania Governor’s Cabinet and Advisory Committee for People with Disabilities. This cabinet exists to make recommendations to the Governor on policies, procedure regulations and legislation that assist people with disabilities in Pennsylvania, serves as a liaison to individuals with disabilities, and as a resource to entities under the Governor’s jurisdiction, ensuring equality for people with disabilities in all facets of state government within the commonwealth.
Devon holds a Bachelor’s Degree from Wheaton College in Illinois, and a Juris Doctor from Western State University, College of Law, in Fullerton, California. Prior to his appointment to his current position, Devon spent almost 10 years in the Reconsideration Unit of the Department of Public Welfare.
Some of his adventures include riding cross country on a motorcycle, climbing Mt. Fuji in Japan, and skiing in the Alps. Devon lives in Palmyra, with his wife and 3 children.
PA Independent Living Radio Show is brought to you every Friday at 12:00 pm EDT/EST by The Arc of Luzerne County. Please consider a donation in support of our work to help improve the quality of life for people with Intellectual and Developmental Disabilities and their families through advocacy, resources, and community education.
For more news and events of interest to the PA disability community, visit PA Disability News.
Come back every Friday at 12pm EST/EDT for PA Independent Living - Thanks for listening!
1 Thessalonians 5:5
You know there’s a lot of talk in new age spiritual circles about “the light” and being “light workers” but this is actually a term and a concept stolen from the Bible.
In our focus scripture for today’s message Paul tells us we are all children of the light and then Jesus tells us that we are the light of the world!
Now Jesus refers to believers as both salt and light and both need to be applied, but when salt’s applied, it goes inward and disappears, whereas light comes from within and always appears.
The salt speaks of our character whereas light speaks of our testimony.
And what the world needs is both penetration and illumination, both character and confession.
Look at these utterly profound words from the lips of Jesus.
See Matthew 5:14-16 KJV
 Ye are the light of the world. A city that is set on an hill cannot be hid.
 Neither do men light a candle, and put it under a bushel, but on a candlestick; and it giveth light unto all that are in the house.
 Let your light so shine before men, that they may see your good works, and glorify your Father which is in heaven.
So stay tuned because in today’s message we’ll learn the who, what and “hows” of being spiritual light AKA "Children of The Light"!
You don’t look “disabled”! Many have thought this statement and/or said it. This is a major reason why many people with a mental/learning or non-visible disability are hesitant to communicate their needs for accommodations at school or on the job? Unfortunately, many adults in the workplace today experienced negative stereotypes in early school years about people who learn differently than others and never learned or were too fearful to communicate their need for help. Special Guest Robert Hickem from Salt River Council joins to discuss the importance of communication between agencies and the persons with disabilities they serve. Today’s Veteran with a mental disability, along with many other non-military personnel, need to learn how to communicate their needs when dealing with challenges such as PTSD. Hear Chip Stoecker, Veteran, and Manager of the Ability Center in Phoenix share suggestions on ways to improve our communication skills. Veterans join our VET2VET™ segment for news updates and commentary at the end of the show.
As adult children of alcoholics, many of us do not even realize just how wounded we truly are. Because we have ridiculously high threhholds for pain, we do not always consciously comprehend how dank our energy bodies are. Many of us have been living in such deep states of survival for so long, we are unaware our emotional set point is one that has us unknowingly avoiding pain rather than seeking joy in our lives. Because so many of us were taught that our needs were unimportant, we no longer seek guidance from within, and so we wind up settling for what shows up.
The most sad aspect of our realities is the fact that we are creators and capable of transcending ANY experience. But for adult children of alcoholics--if we do not even know where our pain is--or where our wounds are--we often times miss the transcendental experience embracing the pain can create. Embracing the pain is an opportunity to create new realities and to live life in new vibrations, literally embracing the opportunity to experience a New Earth in a whole new way.
Adult children of alcoholics come from long lines of dank energy beings, and because our families have been drenched in denial, it can be quite a wobbly experience as one approaches a true healing journey. In this episode we will be discussing the Hero's Path of An Adult Child of an Alcoholic and or Narcissist, and how we can use our experiences to propel us to higher vibrations, so to experience the world in a whole New Way as higher energy beings, living our lives intentionally on a Quantum Level, for the purpose of living our Higher Self Realities through the process of transcendence.