SORT BY Relevancy
Tuesday, April 14 - 3:30 pm
The amazing, incredible, fantastic Jimmy Pollard is going to be with us tonight. Jimmy has quite a speaking schedule these days and is on a mission to educate about clinical trials, namely Enroll HD (http://www.enroll-hd.org/), which is a worldwide observational study for Huntington’s disease families. This study will monitor how the disease appears and changes over time in different people, and is open to people who either have HD or are at-risk. Monitoring people over time in a real-world setting contributes to scientific knowledge. The study is designed to accelerate the discovery and development of new therapeutics for HD.
Jimmy says, "No volunteers for studies, no more advances in the quest for a cure!" Enroll-HD
Also find Jimmy's book on Lulu: "Hurry Up and Wait: A Cognitive Care Companion" (http://bit.ly/1DCUJmO)
This book will give you a set of exercises to simulate the cognitive difficulties faced by those with HD, a collection of tips to accommodate them in your home or care home, a strategy to develop new approaches to solving care problems and commentary on common problems faced by family carers and those they love.
Tune in and let's catch up with our most favorite man on the stand, Jimmy Pollard!
What is Laqunimod? Laquinimod is an experimental drug from TEVA Pharmaceuticals that has already been tested in previous clinical trials in several diseases including Multiple Sclerosis (MS). This drug is thought to affect (or modulate) immune activity by shifting an injurious inflammatory situation to one that is more protective and anti-inflammatory. There is also evidence from various clinical trials that laquinimod may delay progression of disability in MS, and that it reduces brain atrophy as measured by MRI brain scans. By reducing brain atrophy, this drug may have neuroprotective effects [Varrin-Doyer 2014]. This drug can trigger protective neuron factors like BDNF (as measured in blood of MS clinical trial participants) that supports the health of neurons.
We will be talking about LEGATO-HD clinical research trial that will test the safety of Laquinimod.
So excited about this show. I will have two guest. Ms. Devine owner of Beautiful Devine Boutique out of Getorgia. She is a new business owner and we are so excited about what she is doing with her Boutique. My second guest is no stranger to the Purple Bubble Studios; the one and only Desiree Fleming owner of Volupuous You.
Ms. Devine's Boutique is a place where plus size women can come and feel SEXY. Beautiful Devine Boutique is a one stop shop; meaning you can buy an outfit, shoes, accessories and even purchase your Mary Kay.
Volupuous You owner is a self taught fashion designer who is on the cutting edge with her designs. She is creating the heat that flows from Florida.
Let's talk about caregiving! Tune in today as we talk with Dr. Goodman about the challenges of caregiving for our HD and JHD loved ones. Many of us are dealing with so much loss before the loss and after the loss of our loved ones. If you are a caregiver you know what I'm talking about. One person states, "On top of the personal stress, there is also the stress of maintaining one's home: replacing broken glass, punched doors, cleaning the furniture, not having friends over as often which lends into losing many people. Many of these "things," which is actually part of one's home community, go to pot so to speak. Even the outside of the home becomes shabby....all this lends to the stress of a caregiver."
In trying to identify how many of us are caregiving, I found that it's really impossible to know the numbers because of the level of stress that the caregiver is under 24/7. This stress does not let up; it only intensifies. Those of us who are under this kind of stress don't have time to answer surveys or polls. The question is how can we live like this? Who will help us? It's our own community who are so giving and caring and supportive, that's who.
Thank you HD Community for all that you do; for your committment to help others. You are amazing!
I'm back! I had my show here, on blogtalkradio, before. But had to come back to it, as life threw me some curve balls. A little about myself: I am a artistic, fun loving psychic-meduim with clairaudient, clairsentient, and clairvoyant ablities. These ablities were very vivid when I was little, and have been honed, now as an adult. My show is about helping others, through intuitive conuseling. There's a lot of fun, alot freedom, and a lot of faith to be had here! So join me, and if you have a question, just call in! Blessings!
ON HELP4HD RADIO Tuesday, March 3, 3:30 pm PST/6:30 pm EST
Dr. Goodman writes about the Pride-HD (Pridopidine) study in her recent article...
"PRIDE-HD: Why We Should Bother"
Recruitment is not going well for PRIDE-HD, an important clinical trial now enrolling for Huntington's disease (HD). Why is this? Some think "why bother", particularly when testing a drug they may perceive as a failure in earlier trials. For some others, the trials may seem to too hard, too long, or not permit other drugs they are taking. Still others are waiting for the gene therapy magic bullet they believe is just around the corner...
Help4HD says, "Because we don't know until we try."
Tune in to the show and let's talk about it!
Open Forum Roundtable on Today's Topics
No divorce is sweet and rarely is it as amicable as hoped for. A spouse isn't the only thing lost in divorce; so are one's home, sense of security, finances, peace of mind and emotional stability. However, there are strategies that, when implemented, can reduce the stress of divorce and quicken the path to restoration and recovery. It is possible to have A Beautiful Divorce.
Join Host Live Chats
- High Frequency Radio Network (83 chatters)
- WGAG Radio (24 chatters)
- Witch School (23 chatters)
- Robert Phoenix (15 chatters)
- Southern Sense Talk Radio (7 chatters)
- Sharon Ann Wikoff (5 chatters)
- TalkSouthRadio (2 chatters)
- True Psychics Network (1 chatters)
- Hotwordz Lyrical Theatre0 (1 chatters)
- Orlando Presentz (1 chatters)
- 65457 (1 chatters)
- Dollhouse Radio by India Morel (1 chatters)