Rett Syndrome Awareness; Defying the Odds

October is National Rett Syndrome Awareness month. Rett Syndrome (RS) is a genetic neurological disorder. After a period of early normal development a regression leads to severe multiple handicaps. Rett Syndrome appears to be a classic example of a disorder of chromatin, the highly condensed form in which DNA is stored within the cell. Treatments vary from daily medications to physical therapy. Many focus on assisting the patient in having the best quality of life, but there is no known cure to help reverse the genetic damage.

Meet Alicia Bryant, a native of Kinston North Carolina. She is graduate of Fayetteville State University and holds a BA in Political Science. She continued her education at Lenoir Community College to obtain her Cosmetology License, shortly after opening her own Salon.

She and her husband have a beautiful 8 year old daughter, Jailynn Amani. When Jailynn was 2 she was diagnosed with a condition called Rett Syndrome. Alicia and her husband had no idea what this condition was, however in the process of becoming educated and learning more about the condition, they started a foundation in hopes of raising awareness in the community about the condition. Thanks to all the love and support from her family, Jailynn has beat all odds.

"We thank God for his grace and mercy." ~ Alicia Bryant

Listen to The Keep It Moving Blog Talk Radio Show on Monday 10/13/2014 @8pm to learn about Rett Syndrome and its affects. Hear Alicia's testimony of unconditional love and caring for her daughter Jailynn.