Call in to speak with the host
Friday, March 16, 2012... marks the one year anniversary of James Valvano's WeHaveAFace.org. Let's honor this amazing person who has a very huge heart for juvenile Huntington's disease and Huntington's disease advocacy.
James was born and raised in New York to a loving couple Amelia and Joseph Valvano and now lives with them in Florida. Diagnosed with Huntington's disease in 2009, he vowed to use his talent of film making and production to record his advocacy mission and share it with the world. He first coined the phrase "I have Huntington's disease...but, Huntington's disease doesn't have me!" And that's how he lives every day.
WeHaveAFace.org was launched on March 10, 2011. From this humble beginning he now has a team of eight super JHD and HD advocates who work together on numerous advocacy projects. He has literally touched the world with information, education and resources relating to JHD and HD through his films, website and the very first app for Huntington's disease awareness called "Help 4 HD" which he developed and launched here October 17, 2011 on The HD View.
James Valvano's "Huntington's Disease Project" is causing a very big stir in the community. Visit his website and view his trailer "The Faces of Huntington's Disease: I am No Longer a Faceless Face" at: www.wehaveaface.org/feature.html.
The world is forever changed because of the heart of this one super-human being. Thank you James, my faithful producer!
Sorry we couldn't complete your registration. Please try again.
Please enter your email to finish creating your account.
Receive a personalized list of podcasts based on your preferences.