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Joanne Crisp and Csaba Ovari are two Australian parents of children with hypoplastic left heart syndrome. They are also Directors for Hearts of Hope Australia -- a nonprofit organization which provides support and encouragement to parents of children with critical congenital heart defects. Today's show discusses how these parents came to know each other, why they started the nonprofit organization and what the nonprofit organization does. It is also chock full of advice from these veteran parents about what to do if your child has a congenital heart defect, who to reach out to and way parents can empower themselves to be better advocates for their children