Family Caregivers Unite! Presents "Baby Hearts"

Anna Marie Jaworski is the mother of a son with a severe congenital heart defect. She started a publishing company, Baby Hearts Press (http://www.babyheartspress.com) for the congenital heart defect community. Erin Engwall is the mother of a son, age 4, with Hypoplastic Left Heart Syndrome (www.mynameisjonas09.blogspot.ca). She’s a South Florida radio personality and a freelance writer. They tell us about themselves, their lives and their careers, and their sons and their heart defects. Drawing on their own experience and that of other family caregivers they discuss the challenges created by severe congenital heart defects for babies, growing children, and their families and family caregivers. They describe the responses to the challenges. They say what more they would like to do and see done to improve ways for helping with overcoming the challenges. The share their messages for children as they grow up with heart defects and for families and family caregivers with babies with heart defects.