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Powerful Patient

Powerful Patient

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Do you feel helpless in the face of "the system?" This show is to help you learn how to take control and steer your way to health. Hear how others have met these challenges and overcome them. Learn how you can do so too. This program is a forum to share your experiences, ask your questions, and learn how to create and manage your health care team. Make the healthcare system work for you!

On-Demand Episodes

Powerful Patient

Karen Ball, CEO of the Sturge-Weber Foundation, speaks with Joyce about Sturge-Weber syndrome (SWS) and the challenges faced by people with this condition. The Sturge-Weber Foundation provides support and services for... more
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Powerful Patient

Father Donald E. Mowery is the retired leader of Youth Services globally. He has had a radio show, Talk it Out with Father Don, on WHBQ radio in Memphis, Tennessee, for the past 45 years. This month Joyce Graff appeared on his... more
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Powerful Patient

Shelley Bowen is the Director of Family Services and Awareness for the Barth Syndrome Foundation (BSF). BSF works to increase awareness on a global level among the medical community, academic community, the medical research... more
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Powerful Patient

Mary-Frances Garber is a genetic counselor who provides Supportive Genetic Counseling, complementing what is traditionally offered in medical centers. Supportive Genetic Counseling is for women and their partners who have... more
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Powerful Patient

Diagnosed with lupus over 30 years ago and committed to living the best life possible, Cindy is full of hope, inspiration and an unsinkable spirit that she loves using to help others affected by life challenging illness live better lives. Despite... more
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Powerful Patient

Joyce talks with Eve (not her real name) about her experience as a caregiver through her husband's chronic illness and death. She then talks with Dr. Sheryle Baker about Eve's experience, and about the changes that occur in the... more
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Powerful Patient

Mike and Joyce speak with Dana Dornsife, President and Founder of an organization called Lazarex that helps people identify and participate in clinical trials that may be appropriate for their condition. Dana first became involved in... more
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Powerful Patient

Mike and Joyce chat about the adventure of going outside your comfort zone for medical care. Joyce has been hosting a family from a village on the west coast of Ecuador who are in Boston to get life-saving heart surgery for their son. Not... more
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Powerful Patient

Joyce and Mike speak with Dr. Joshua Seidman about the concept of "Meaningful Use" in healthcare and how it can be used along with electronic health records (EHR) to improve patient care. Dr. Seidman is Vice President in charge of... more
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Powerful Patient

Joyce and Mike speak with Edward Grandi about Sleep. the importance of sleep. Grandi, the former executive director of the American Sleep Apnea Association, is a nationally and internationally invited speaker in the field of sleep medicine... more
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