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Living with BHD - Birt-Hogg-Dubé syndrome

  • Broadcast in Health
Powerful Patient

Powerful Patient


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Jean S. from Oregon joins Mike and Joyce for a conversation about Birt-Hogg-Dubé syndrome, one of several recently identified genetic causes of kidney cancer. 

Jean s a volunteer with the VHL Family Alliance, providing support for others with BHD.  VHLFA provides patient support for people with a number of genetic tumor conditions, including VHL, HLRCC, and BHD.

Jean shares her story of diagnosis -- how she found out the name of the condition that was plaguing her -- and how she has learned to manage her health. 

Please join us for this conversation.  Jean will be taking calls during the program, or you can contact her later at, in the conversation about BHD.