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FSHD Society Radio

FSHD Society Radio

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This talk show features people, advocacy, research, and more from the FSH muscular dystrophy community. Sponsored by the nonprofit FSH Society.

On-Demand Episodes

FSHD Society Radio

Join us on Wednesday, December 26th, at 8:00 pm Central / 9:00 pm Eastern time for our live interview with June Kinoshita, Chief Strategic Programs Officer of the FSH Society. This has been a breakthrough year for the FSH Society,... more
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FSHD Society Radio

Amanda Rickard--someone well known to the FSHD community as one of those exceptional scientists who love to help patients and families understand what's going on at the frontiers of FSHD research. Amanda Rickard is a... more
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FSHD Society Radio

Join us on Thursday, November 1, 2018, for our live interview with Skylar Conover. As 2015 Ms. Wheelchair USA, Sklyar shared her journey as a young woman diagnosed with FSH muscular dystrophy and has become a national... more
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FSHD Society Radio

Taylor Quigg is a wife and mother of two who lives in the suburbs of Philadelphia. Taylor was diagnosed with FSH in 2014 when she was eight weeks pregnant with her second daughter. She has worked hard to overcome the label and show... more
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FSHD Society Radio

Kristin Duquette, former U.S. Paralympic team athlete and disability rights advocate. A former FSH Society staffer, she served as a confidential assistant to the chief of staff of the National Endowment for the Arts under the Obama... more
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FSHD Society Radio

Beth Johnston and Leigh Reynolds, the dynamic duo who are spearheading the FSH Society's national chapter program. Led by volunteers and supported by FSH Society staff, the Chapter Program is our greatest opportunity to fund more... more
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FSHD Society Radio

Join us for an interview with Curt Calder, co-founder of AnsonCalder, a leather accessories company that weds artisan materials and fine craftsmanship with minimalist, functional designs inspired by his experiences as a busy finance... more
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FSHD Society Radio

This month, our host Tim Hollenback has a conversation with Dave Lukas, an Illinois native who was diagnosed with FSH muscular dystrophy a little over three years ago. Dave has shared aspects of his journey with bracing and eloquent... more
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FSHD Society Radio

Jennifer Egert, PhD Join us on April 25th, 9:00 PM EST / 8:00 PM CST for a live, on-air interview with Jennifer Egert, Ph.D., a clinical psychologist with FSHD who offers mindfulness based psychotherapy and workshops in Mindfulness Based... more
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FSHD Society Radio

Join us for a live, on-air support group session with the regulars at CT Connections, the FSH Society's member group based out of Connecticut. For the past few months, the group has been meeting monthly via video conference to... more
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