ChroniCarly

Carly's story:

After 6 months of battling with health care providers who either didn’t care, or wanted to report my family to child protective services, I was diagnosed at age 13 with Crohn’s disease. 21 years later, I’m missing a lot of intestine, have gained a bunch of symptoms and side effects, and am in my seventh year facilitating an IBD support group for my region. I’ve been incorrectly diagnosed with ovarian cancer, told I had an hour to live, been a passenger in an ambulance that got lost, fought for reasonable accommodations at work, bought and lost a home, participated in clinical trials for two medications that are currently very popular, and probably used half of the public restrooms in the United States.  

I was a Stanford Medicine X ePatient Scholar for 2012 and again in 2014. That same year I was also selected to present a panel I created on invisible illness and pain tracking. The panel is notable for including the first virtual patient panelist at MedX. 

Follow Carly on Twitter: @CarlyRM

website is: http://blog.chronicarly.com/