Spasmodic Dysphonia: Unmasking the Mystery

Guests: Kimberly Kuman, Charles (Charlie) Reavis, and James (Jim) Anderson

Kimberly Kuman, has served as the Executive Director of the National Spasmodic Dysphonia Association since 2005. She joined the Dystonia Medical Research Foundation in 1992, and served as Director of Operations for the Alexian Neurosciences Institute in 2002, where she managed the Movement Disorders and Alzheimer’s clinics.

Charlie holds degrees in electrical and industrial engineering, with a vast career in telecommunications and management. He was diagnosed with adductor spasmodic dysphonia (SD) in 2001 and receiving his first Botox treatment soon after diagnosis. He joined the National Spasmodic Dysphonia Association as a Board member in 2002, and in 2010, he was elected as President.

Jim is a 51 year old retired firefighter, who recently obtained his Bachelor’s Degree in Accounting. His symptoms of adductor SD began during his senior year in high school, and his first Botox treatment was received at the Greater Baltimore Medical Clinic. Jim has been active in community politics, and also co-leader of the Tampa Bay SD support group. Jim helps to organize an annual fundraiser and works to increase awareness among the public and professionals about appropriate diagnosis and treatment for persons with SD.

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