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Powerful Patient

Powerful Patient

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Do you feel helpless in the face of "the system?" This show is to help you learn how to take control and steer your way to health. Hear how others have met these challenges and overcome them. Learn how you can do so too. This program is a forum to share your experiences, ask your questions, and learn how to create and manage your health care team. Make the healthcare system work for you!

On-Demand Episodes

Powerful Patient

Megan Barron has lived her whole life with a condition called recessive dystrophic epidermolysis bullosa, a rare connective tissue disorder. Her skin layers don't have the proper protein to hold them together, rendering my... more
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Powerful Patient

Maria Hester, M.D., is a physician in the Washington DC area who is committed to patient empowerment. Through her corporation Savvier Health, she offers on-site workshops at area corporations to improve employeers' "patient... more
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Powerful Patient

Luciana Holtz is the Executive Director of the Urologic Institute in Sao Paolo, Brazil. She joins Joyce and Mike to talk about the work of her institute on kidney cancer and other urologic diseases in Brazil.
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Powerful Patient

The Caregiving experience is stressful for the patient as well as the caregiver. Whenever possible it is good to negotiate the changes in roles and responsibilities that occur. Both the patient and the caregiver need to work on evolving the... more
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Powerful Patient

Joyce talks wth Dr. Rick Mars, a member of the Dental care Group in Aventura, Florida, about the importance of dental health to your overall health. Bacteria involved in periodontal disease have been linked to heart disease and... more
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Powerful Patient

An increasing number of genetic risk factors are appearing in the press. As we learn more about the human genome, we are discovering the genes responsible for a number of diseases. Some are damaged during our lifetimes;... more
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Powerful Patient

Mike and Joyce have attended a number of conferences recently, advocating for you, and learning more. They take time to interview each other about their recent activities and share with you what they have been up to. Mike attended the... more
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Powerful Patient

Mike and Joyce speak with Sylvia Anthony on June 13 about her autobiographical book, Till the End of Time. Life has not always been easy for Sylvia Anthony, but if you met her you would see a vibrant, remarkable woman... more
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Powerful Patient

Prune Belly Syndrome (PBS) is the common name for Eagle-Barrett syndrome, a group of birth defects which includes triad syndrome and urethral obstruction malformation sequence. This is a group of birth defects that can be serious... more
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Powerful Patient

When Christal Presley's father was eighteen, he was drafted to Vietnam. Like many men of that era who returned her childhood locked in his room, gravitating between the deepest depression and unspeakable rage, unable to participate in... more
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