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PIDD radio

PIDD radio


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PIDD radio is a show for the primary immune deficiency community and to raise awareness of the 150+ types of primary immune deficiency diseases, discuss our treatments and our concerns. There are approximately 250,000 people diagnosed with primary immunodeficiency diseases in the United States. Now we have our own show! Patients & parents worldwide are welcome to call in. If you have a topic or original music you would like on PIDD radio message me. I'd love to hear from you! **PIDD radio is a source of support and discussion about primary immunodeficiency diseases. It is not a substitute for professional services including the practice of medicine or other professional advice. All callers and listeners should consult their medical or other competent professionals for health care, social services, or any other guidance. If any part of our discussions is inconsistent with the recipient's medical caregivers' advice, comply with the medical caregiver's advice.

On-Demand Episodes

Stacey Mason-Sottile is a sickle cell disease warrior, author, poet & activist. Learn more about sickle cell disease and how your blood donations save lives.

What are the challenges patients are facing when being treated for primary immune deficiency disease. Raising awareness of PI. Living with PIDD? I'd love to hear from you. My listener dial-in number is (661) 244-9849

A chat with Kimberly about her rare C4 deficiency and what she has done to raise awareness of PI in her community. Call in with your questions or comments.

With guest Aiman Youssef. Call in to chat with us live! Dial in number is 347-934-0024

We are supposed to be a country of the people by the people. Shouldn't every candidate's voice be heard? Listen to our show and call in with your questions for write in candidate Michael post. My dial-in number is (347) 934-0024.... more

Broadcasting live from Midland Avenue Relief hub. Are you a hurricane victim or volunteer? I would love to hear from you. My dial-in number is (347) 934-0024 or visit Aiman at the hub this Thursday at 6:30 PM.

Interview with Aiman Youssef founder of Midland avenue neighborhood relief. Please join us for a Walk A Mile In Our Shoes event in Midland Beach on Saturday March 9th. Meeting place at 481 Midland Ave 9am - 10am

Hurricane Sandy forever changed our lives and that of our neighbors. As a primary immune deficiency patient I faced specific challenges I want to share with you so you may be more prepared in case of a disaster. I also want you to... more

Join us to speak with Kari about primary immune deficiency diseases

Living with PIDD? I'd love to hear from you. My listener dial-in number is (347) 934-0024
Show Extras