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Leigh comes forth today talking about what brought her into the passion for the activism for lymphedema rights, what she has done with that time frame, and what her hopes are for the future.
Leigh was diagnosed at 21 years old with lymphedema/lipedema, PCOS, fibromaylgia, Chronic fatigue syndrome high blood pressure, hypothyroidsm all on the same day. She had gained 230 pounds in one year. After reaching 500 pounds she had gastric bypass surgery, successfully losing 340 pounds in one year. After consulting with Dr Herbst in June 2014 for a "formal" diagnosis of stage 3 lipoedema she has undergone 3 surgeries for lipedema, all reimbursed by BCBS PPO. Additionally she has authorization for 6 total surgeries and 1 tummy apron removal. She is a disabled stay at home mother of 3, hoping to help others in the same situation with a non profit organization and insurance questions/answers.
To learn more about the activism and lymphedema issues:
Lymphedema Treatment Act http://lymphedematreatmentact.org
and remember to keep #SharingYourVoice