Monday, January 23, 2012 - Tonight our incredible special guest is Judy Roberson from Sacramento, California. We want to thank her for the advocacy work she has done for many years for Huntington’s disease.
Tonight we honor Judy Roberson, President of the Joseph P Roberson Foundation. She is an HD advocate extraordinaire with a flare and she is here to talk about her role as President of JPRF. Judy worked as a surgical nurse in ICU at the VA Hospital in Palo Alto several years ago. Her husband Tim was diagnosed with HD at age 36, passed away 8 years ago leaving her and 4 children.
She is a retired volunteer of 15 years with the HDSA Northern California Chapter and her new role is patient advocate for CIRM (California Institute for Regenerative Medicine). She has done legislative advocacy work for HD in Sacramento and she is the first voting patient advocate for HD with the FDA. We are excited and thrilled to have Judy with us tonight. Website: www.jprobersonfoundation.org
TOPICS FOR DISCUSSION TONIGHT: IVF - Invitro Fertilization PGD - Preimplantation Genetic Diagnosis HD Advocacy DNR - Do not resuscitate DNI - Do not intubate NP - No pressors