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Help4HD

Help 4 HD Live!

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Welcome to Help4HD Live! We are proud to broadcast credible information and education to the Huntington's disease community on a weekly basis. Help4HD Live! broadcasts every week providing vital information and inspiration to our Huntington's community. We have been blessed to interview many of our JHD/HD researchers, medical professionals, care providers and the pharmaceutical industry for six years. Join our Hosts, Katie Jackson each week for incredible programming and don’t forget to share this channel with your colleagues, family and friends. **Help 4 HD Live! is made possible through a generous communications grant from Teva Pharmaceuticals and the Griffin Foundation. Thanks for tuning in! Help 4 HD International Inc. **Please consult with you own physician for advice about any medical recommendation.

Upcoming Broadcasts

Havanna Lowes: Havanna is one of the most brilliant 17-year-olds I have ever come in contact with. Havanna visited Washington, DC, for the first time in June of last year. There, she was able to speak personally to four staff members about HD and the Parity Act. Havanna spoke to her senator from Missouri, and he signed the Parity Act in July. Havanna has spoken at many education days. Just recently, she spoke at the Huntington Study Group meeting in Nashville. She is passionate about Huntington's disease youth programs like NYA and HDYO. She has held fundraisers and has given talks about HD to her community. Havanna says, "Advocacy is about telling your story to your community and getting people involved and informed." Havanna is an amazing young lady that I believe will go so far in this world and will continue to be a champion for HD.
  • by Help4HD
  • in Health
  • 01:30
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On-Demand Episodes

Join us on December 7, 2016, to hear Help 4 HD International interview the amazing Lauren Holder. We are going to talk about Lauren's story, some of Lauren's advocacy projects she has done, and about her recent article in Good... more

WAVE Life Sciences is a preclinical genetic medicine company focused on advancing first-in-class or best-in-class stereopure nucleic acid therapies for patients impacted by rare diseases. We are utilizing our innovative and... more

Intro into Ashley Clarke's Blog: https://kyraashley.wordpress.com/ They say there's a reason for everything. So there must be a reason my life is affected by Huntington's Disease. And that is the reason for this blog. My name is Ashley.... more

Should people who are suffering from terminal illnesses be allowed to choose death with dignity? Should families of loved ones who are suffering from terminal conditions be allowed to ?pull the plug?—or even administer lethal doses... more

Should people who are suffering from terminal illnesses be allowed to choose death with dignity? Should families of loved ones who are suffering from terminal conditions be allowed to ?pull the plug?—or even administer lethal doses... more

Join us to hear Dr. Anderson and Dr. Feigin give us a update on LEGATO-HD.

Pre-recorded at WAVE Life Sciences headquarters in Cambridge, Massachusetts, Katie Jackson interviews three of the leaders of this inspiring 10-year-old company. Paul Bolno is the CEO, Michael Panzara is the head neurologist, and... more

Join us to hear all about what is going on at HDYO. The Huntington's Disease Youth Organization (HDYO) is a non-profit voluntary organization that provides appropriate information and education, along with support for young people... more

NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 250 patient organization members, is committed to the... more

Join us to hear about all the exciting speaker and activities that are taking place at this years annual symspoium in Florida. https://www.research.net/r/symposium-registration

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