Making Memories Everyday with our CHD Families

When a parent has a normally healthy child, it's easy to take a day for granted. Conversely, when a parent gives birth to a special needs child, every day takes on new importance. When a parent has a child with a life-threatening illness, each day can seem like a miracle. How do parents of children with congenital heart defects make each day special? How do parents of CHD survivors make memories everyday? What riturals are significant to a special needs family? Should parents create special rituals if a child passes away? When we know that any day could be our last with our CHD survivors, it is even more critical to make each and every day special and to create special memories to sustain us through hospitalizations, medical procedures or, the worst fate a parent can imagine, losing a child too soon.