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Welcome to the Empowered Family Caregiver Podcast with Tandy Elisala
EFC: EP 30 Interview with Christy Vacchio - Caring for the Rare Disease Child
Tune in to episode 30 of the Empowered Family Caregiver podcast with guest, Christy Vacchio. November is #DiabetesAwarenessMonth and Christy has two children with DEND syndrome. DEND is a very rare, generally severe form of neonatal diabetes mellitus characterized by a triad of developmental delay, epilepsy, and neonatal diabetes. Christy shares her journey caring for two rare disease children and the reality of being a pioneer. Check out our blog article with an overview of our podcast HERE.
Christy Vacchio is a full-time mom, wife, and instructional coach by day. By night, she runs a small business, helps support families as they join this new world of DEND syndrome and Neonatal Diabetes, and occasionally posts on her two blogs and runs a store on Shopify with graphic designs for rare diseases and special needs toys. Connect with Christy via her Blog/Shopify Store: https://babieswithdiabetes.org/
Connect with other family caregivers via my supportive and private Facebook group HERE.
Take this quick free quiz to discover your caregiver personality and get useful tips for caregiving without the overwhelm HERE.