Sharon Hall and Janelle Drake, who both have husbands diagnosed with FTD, will discuss what we had to learn the hard way and what we want people newly diagnosed to know that will help them deal with this diagnosis.
No one can know what it is like to live through a frontotemporal dementia diagnosis better than those who have been there. Sharon and Janelle will share their trials and tribulations that followed the diagnosis. It takes an average of 4 years to get a frontotemporal diagnosis. During that time, the frustration and the feeling of not being heard becomes overwhelming. When we finally get a diagnosis, the relief and grief set in and we then say, now what?
We will try to address the now what question, by telling you what we found to be the most valuable information.