Welcome to the Empowered Family Caregiver Podcast with Tandy Elisala
EFC: EP 30 Interview with Christy Vacchio - Caring for the Rare Disease Child
Tune in to episode 30 of the Empowered Family Caregiver podcast with guest, Christy Vacchio. November is #DiabetesAwarenessMonth and Christy has two children with DEND syndrome. DEND is a very rare, generally severe form of neonatal diabetes mellitus characterized by a triad of developmental delay, epilepsy, and neonatal diabetes. Christy shares her journey caring for two rare disease children and the reality of being a pioneer. Check out our blog article with an overview of our podcast HERE.
Christy Vacchio is a full-time mom, wife, and instructional coach by day. By night, she runs a small business, helps support families as they join this new world of DEND syndrome and Neonatal Diabetes, and occasionally posts on her two blogs and runs a store on Shopify with graphic designs for rare diseases and special needs toys. Connect with Christy via her Blog/Shopify Store: https://babieswithdiabetes.org/
Connect with other family caregivers via my supportive and private Facebook group HERE.
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