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Erica is a 28 year old who lives with MPS I Hurler Scheie Syndrome which is a type of Mucopolysaccharidosis. She has been receiving enzyme replacement infusions since May 05 and has had about 3 dozen surgeries and procedures in just the past 6 years including 11-12 shunt revisions for communicating hydrocephalus this year and 14 in total. Erica is also a co-Leader with the American Pain Foundation as an Action Network Leader in Wisconsin. She does advocacy and outreach pain education in communities and at hospitals with providers and patients. Learn More: Erica Thiel
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OR MPS Forum
CALL IN#: (347) 324 - 5661 then push 1 if you wish to speak with Erica
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It's good to talk.