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NIH Talks about Ds Connect - The Down syndrome Registry

  • Broadcast in Parents
The Road Weve Shared

The Road Weve Shared


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We're excited to have Sujata Bardhan, Ph.D and Melissa Parisi, M.D., Ph.D. from the Eunice Shriver Kennedy National Institute for Child Health and Human Development (NICHD), National Institute of Health (NIH) visit us to talk about DS-Connect the online research and data portal that launched in September of last year.  We'll find out where you can connect with them at the NDSC conference and talk a little bit about their work so far.  Drs. Bardhan and Parisi are very open to hearing your questions and concerns as parents/guardians and have already started a dialogue with us on The Road about how it can help the adult population.  Join us to get a preview of what's coming up in Indianapolis and feel free to call in with questions or post them on our chat board while we're live on the air.

You can check out the registry site here.