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Living With HOPE Guest: Eric Miller

  • Broadcast in Health



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Epilepsy is the topic tonight.

In August 2011, Carolina Barcelos Carneiro de Oliveira Miller passed away tragically as a result of Sudden Unexpected Death in Epilepsy (SUDEP). She was only 25 years of age. 

Carolina had epilepsy since her teenage years and had taken medication daily to control her already infrequent seizures.  However, SUDEP tragically struck.  SUDEP is a little known and less understood aspect about epilepsy - affecting 1 in 1000 people with epilepsy who are controlled (i.e. medication) and 1 in 150 people with epilepsy who are uncontrolled (i.e. no medication.)  A staggering and alarming fatality rate.

Since that time her husband, Eric Miller, has worked tirelessly to raise awareness about epilepsy and SUDEP particularly.  Not only to honor Carolina but in the hopes of preventing others from suffering such a tragic loss.  

Among other things, he's created Candlelight Concerts for Epilepsy Awareness, an online concert series featuring international performers.  These intimate house concerts are streamed online for a pay-what-you-can donation.  People have been tuning in from around the globe, furthering the message about epilepsy to a broader community.

For more on Carolina's story, epilepsy, and this benefit concert series you can visit