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Living with RSD (Reflex Sympathetic Dystrophy) Guests: Denise and Bill Shaw

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Our guests tonight are Denise and Bill Shaw. As a couple, they spend much of their time raising awareness for RSD in many ways. We decided almost immediately after me getting diagnosed that we would try and educate whenever possible about RSD and chronic pain. I found RSDchat.org about 2 ½ years after I was diagnosed and I was hooked immediately to connecting and helping others who suffer with RSD and chronic pain, I was no longer the only one! I started volunteering for an online help forum as a group leader and met so many wonderful people. Another group usarsd.org found me and recruited me to their site almost immediately. I not only edit their newsletters but am their acting secretary and hotline volunteer. The hotline basically runs through Google, just click put your number in and Google connects the two parties anonymously! So, during the day between 11-5 M-F our phone is listed for the hotline and therefore rings into our home. Two years ago Bill and I did the Achilles Walk for Hope and Possibility and raised 1000.00, we completed the 5 miles and felt such achievement we knew we had to do it again. In order to raise awareness and money Bill wrote a letter to the editor of our local paper who printed it immediately! Hopefully I will be up to creating a small local support group here now that I know there is interest and others like me in this rural area. We went to our local assemblyman and gave him information on RSD and sites and he donated money for our fundraiser. For the walk I also created a hat for usarsd.org that my team wore the day of the walk, so many commented on how great the hat was and how they would check out the site!!! I was also interviewed by RSDSA the day of the walk. Bill has also always been available as support to any spouse who needed it when they lived with someone with RSD. Bill and Laura’s husband I think were the first 2 men to connect.